Mado
New member
- Joined
- Jan 24, 2017
- Messages
- 1
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
Hi,
I have been struggling with what I have for more than 6 years now, I have seen countless numbers of doctors who failed to diagnose my condition (Sleep specialists, Neurologists, Rheumatologists...etc).
I experience immense amounts of muscle pain, sleep deprivation, depleted energy, poor concentration and memory, appetite loss and minor stomach contractions.
I would be fine for few days then without warning it would hit me in the morning when I wake up. I feel complete devastation and the pain along with all other symptoms would keep increasing until I sleep again for really long hours (The severity of the pain varies, sometimes it gets localized in my cheeks, inner thighs and lower back while other it is so intense and all over my body and only go away with prescribed pain killers). The symptoms can last days If I don't break the cycle by sleeping well.
I have been on seizure meds as my neurologist thought that i might have "tonic/stiff sleep seizures" but all the Video-EEGs came back negative along with the MRI and seizures do not explain the pain. In his notes he wrote that I might have fibromyalgia.
However, my pain is constant...It does not increase when I press (I don't have tender or trigger points). I also don't experience any muscle twitches or weakness.
Could anyone relate please?
-Thank you!
I have been struggling with what I have for more than 6 years now, I have seen countless numbers of doctors who failed to diagnose my condition (Sleep specialists, Neurologists, Rheumatologists...etc).
I experience immense amounts of muscle pain, sleep deprivation, depleted energy, poor concentration and memory, appetite loss and minor stomach contractions.
I would be fine for few days then without warning it would hit me in the morning when I wake up. I feel complete devastation and the pain along with all other symptoms would keep increasing until I sleep again for really long hours (The severity of the pain varies, sometimes it gets localized in my cheeks, inner thighs and lower back while other it is so intense and all over my body and only go away with prescribed pain killers). The symptoms can last days If I don't break the cycle by sleeping well.
I have been on seizure meds as my neurologist thought that i might have "tonic/stiff sleep seizures" but all the Video-EEGs came back negative along with the MRI and seizures do not explain the pain. In his notes he wrote that I might have fibromyalgia.
However, my pain is constant...It does not increase when I press (I don't have tender or trigger points). I also don't experience any muscle twitches or weakness.
Could anyone relate please?
-Thank you!