katydid
Senior member
- Joined
- May 5, 2013
- Messages
- 200
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- Somewhere
Hey guys!
This is not spam, I promise!
So I found some information about fibromyalgia that I really wanted to share with everyone...
I know most of us research our behinds off, but sometimes we don't see some of the good stuff...
I know people are always curious about new research being done and such, so I really really wanted to share this with you guys.
This link in my post is to a medical journal, no ads, no garbage claiming to be a cure etc, it's strictly research and information... That's why I want to share it..
The title is called "mitochondrial myopathy presenting itself as fibromyalgia" and it's an actual case study with a real patient!
One thing to keep in mind is this is a theory and research, they're not saying that this is the cause, just a theory..
Now, my aunt has what's called a mitochondrial myopathy, lactate dehydrogenase deficiency, type 11a, big name right?.... She sees one on the top specialists In our region for immunology, his names Dr Julian ambrus, well last summer she had asked him about me and my other cousin.. Apparently, and I've researched this also, but these mitochondrial myopathies can be genetic and run in families.. I have found other medical journals and documents showing the correlation, but I had to do some digging because most doctors don't know a whole lot about mitochondrial myopathy.. Also, I should mention, there are many types of mitochondrial myopathies...
Anyways, this Dr seems to think it runs in my family apparently, he wants to see me, but I haven't called yet, as I have had it with Dr's poking and prodding and wanted to explore my other options with treatments before I added yet another day into the mix...
But like I said, I really wanted to share this info with you guys because you just never know and I feel it's empowering for us to learn and explore and know what's going on in the medical community...
Also, if anyone has been keeping up with link56's posts about mayo clinic this week, he mentioned that they were taking about lactic acid levels being overactive and such, and this is why I felt like I really wanted to share this because if the mayo clinic is talking about similar stuff, maybe this has some weight to it then!
Check it out and let me know what you guys think!
And if you are intrigued, do some research and see what you can dig up!
Hope you guys find this as interesting as I do!
This is not spam, I promise!
So I found some information about fibromyalgia that I really wanted to share with everyone...
I know most of us research our behinds off, but sometimes we don't see some of the good stuff...
I know people are always curious about new research being done and such, so I really really wanted to share this with you guys.
This link in my post is to a medical journal, no ads, no garbage claiming to be a cure etc, it's strictly research and information... That's why I want to share it..
The title is called "mitochondrial myopathy presenting itself as fibromyalgia" and it's an actual case study with a real patient!
One thing to keep in mind is this is a theory and research, they're not saying that this is the cause, just a theory..
Now, my aunt has what's called a mitochondrial myopathy, lactate dehydrogenase deficiency, type 11a, big name right?.... She sees one on the top specialists In our region for immunology, his names Dr Julian ambrus, well last summer she had asked him about me and my other cousin.. Apparently, and I've researched this also, but these mitochondrial myopathies can be genetic and run in families.. I have found other medical journals and documents showing the correlation, but I had to do some digging because most doctors don't know a whole lot about mitochondrial myopathy.. Also, I should mention, there are many types of mitochondrial myopathies...
Anyways, this Dr seems to think it runs in my family apparently, he wants to see me, but I haven't called yet, as I have had it with Dr's poking and prodding and wanted to explore my other options with treatments before I added yet another day into the mix...
But like I said, I really wanted to share this info with you guys because you just never know and I feel it's empowering for us to learn and explore and know what's going on in the medical community...
Also, if anyone has been keeping up with link56's posts about mayo clinic this week, he mentioned that they were taking about lactic acid levels being overactive and such, and this is why I felt like I really wanted to share this because if the mayo clinic is talking about similar stuff, maybe this has some weight to it then!
Check it out and let me know what you guys think!
And if you are intrigued, do some research and see what you can dig up!
Hope you guys find this as interesting as I do!