Undaunted
New member
- Joined
- Feb 6, 2015
- Messages
- 6
- Reason
- DX FIBRO
- Diagnosis
- 04/2016
- Country
- US
- State
- OH
Hey everyone,
After five long years of trying to get doctors to take me seriously, lots of blood tests to rule out other possibilities, and visits to a good rheumatologist (finally!), I've officially been diagnosed with fibromyalgia. I do have what seems to be the "normal" fibro pain--widespread deep aching/getting stabbed by needles in a million places.
However, I do also have major joint pain--very sharp, localized pain in my all of my hand joints, knees, feet, hips, and elbows. They are so stiff sometimes and if I keep still for even five minutes or so, especially my hands and knees, they lock up and I get shooting pain. Same thing if I work my hands to much or try to squat/lift things "using the knees, not the back" like you are supposed to. Sometimes my joints just give out on me. And most nights, even beyind the tossing and turning because of the widespread pain, I will wake up to shooting pain in some joint or other and I will not be able to move it for several minutes.
That being said, my RA factor and CCP blood tests both came back negative, as did the general inflammation blood tests my rheumatologist ordered. In the physical exam he did, he saw no inflammation at all. So, in light of all that, he certainly ruled out RA, and I am only 19 so osteoarthritis is unlikely as well.
My question is... do others with fibro experience this type of pain as well? It feels so much like arthritis, which runs in my family in both forms on both sides. Are the joints just more sensitive? Is this completely within the realm of normal for fibro? What is going on?
Thank you for any clarity you can give me!
~Undaunted
After five long years of trying to get doctors to take me seriously, lots of blood tests to rule out other possibilities, and visits to a good rheumatologist (finally!), I've officially been diagnosed with fibromyalgia. I do have what seems to be the "normal" fibro pain--widespread deep aching/getting stabbed by needles in a million places.
However, I do also have major joint pain--very sharp, localized pain in my all of my hand joints, knees, feet, hips, and elbows. They are so stiff sometimes and if I keep still for even five minutes or so, especially my hands and knees, they lock up and I get shooting pain. Same thing if I work my hands to much or try to squat/lift things "using the knees, not the back" like you are supposed to. Sometimes my joints just give out on me. And most nights, even beyind the tossing and turning because of the widespread pain, I will wake up to shooting pain in some joint or other and I will not be able to move it for several minutes.
That being said, my RA factor and CCP blood tests both came back negative, as did the general inflammation blood tests my rheumatologist ordered. In the physical exam he did, he saw no inflammation at all. So, in light of all that, he certainly ruled out RA, and I am only 19 so osteoarthritis is unlikely as well.
My question is... do others with fibro experience this type of pain as well? It feels so much like arthritis, which runs in my family in both forms on both sides. Are the joints just more sensitive? Is this completely within the realm of normal for fibro? What is going on?
Thank you for any clarity you can give me!
~Undaunted