Tyger
New member
- Joined
- Jul 30, 2016
- Messages
- 5
- Reason
- DX FIBRO
- Diagnosis
- 04/2016
- Country
- UK
- State
- Uk
All the pain. The pills. The doctors appointments. The feeling like a failure because i cant complete normal, once everday, ordinary tasks. I have to rest after drying my hair. Which i can barely do. I need help to cook, or must rest or sit while doing it. Its crazy. Im only 23, i just feel like, this wasnt supposed to happen, this wasnt in my plan. How do i come to grips with this?
Im just trying so hard to come to grips with this, but my job makes it hard as well. (Im a teacher) its holidays now and in trying so hard to get it sorted but it just feels like its elluding me. Any recommendations for managing this? Anything that seems to work or help?
Im applying for a blue badge as well and they sent me a form for medical evidence - my doctor is a rheumatologist, so shes been handling most of it. She spotted it really quickly, guess i was lucky, especially after hearing some peoples stories of waiting two years. She already suspected it after a month, i think, because she deals with a lot of cases of it.
I just assumed the blue badge people would contact my doctors - do i need to ask them to write me a statement? This is all so overwhelming. I just want help and cant escape the feeling that im just being denied it.
Gotta stay positive. Gotta hope that someone has answers. That ill keep learning how to manage this. I just wish i wasnt so confined to my house. I feel so crippled now, and it feels like theres no excuse for it, as this thing is invisible.
Just feeling down. My partner wants me to get better. I love him to bits but it gets me down sometimes as i dont know if i can get any better. It just seems to be getting worse and worse, especially with my mobility.
On the home front everyones being amazingly helpful at the moment. Dad helped me with cooking (opening tins, etc) and my partner helped me walk to the local shop to grab a drink and lollie. Got to walk the dog a little, she seems to understand my issues and never pulls on the lead anymore (thank god!) Shes a staff cross so a real powerhouse.
Gotta stay strong. And remember the wins.
Im just trying so hard to come to grips with this, but my job makes it hard as well. (Im a teacher) its holidays now and in trying so hard to get it sorted but it just feels like its elluding me. Any recommendations for managing this? Anything that seems to work or help?
Im applying for a blue badge as well and they sent me a form for medical evidence - my doctor is a rheumatologist, so shes been handling most of it. She spotted it really quickly, guess i was lucky, especially after hearing some peoples stories of waiting two years. She already suspected it after a month, i think, because she deals with a lot of cases of it.
I just assumed the blue badge people would contact my doctors - do i need to ask them to write me a statement? This is all so overwhelming. I just want help and cant escape the feeling that im just being denied it.
Gotta stay positive. Gotta hope that someone has answers. That ill keep learning how to manage this. I just wish i wasnt so confined to my house. I feel so crippled now, and it feels like theres no excuse for it, as this thing is invisible.
Just feeling down. My partner wants me to get better. I love him to bits but it gets me down sometimes as i dont know if i can get any better. It just seems to be getting worse and worse, especially with my mobility.
On the home front everyones being amazingly helpful at the moment. Dad helped me with cooking (opening tins, etc) and my partner helped me walk to the local shop to grab a drink and lollie. Got to walk the dog a little, she seems to understand my issues and never pulls on the lead anymore (thank god!) Shes a staff cross so a real powerhouse.
Gotta stay strong. And remember the wins.