QuietLight
New member
- Joined
- Sep 10, 2014
- Messages
- 6
- Reason
- Undiagnosed
- Diagnosis
- 04/2014
- Country
- US
- State
- NY
I am new here and have been diagnosed with Fibromyalgia. Unfortunately, my family and I realized I have had it since childhood on and off, but now in my mid 40's it isn't going away. Nothing is helping it except not doing a thing...and as a woman, we all know that just doesn't cut it...not unless we want to do nothing. For years I had been told by doctors not to lift heavy items, climb stairs, vacuum etc. Little did anyone know that it was chronic, even though I felt it all the time, I got used to it. Then one day this past April, I got what we thought was the flu. We went to the ER to get a diagnosed...instead they said UTI. Treatment began there, then my arms began trembling all the time, my legs getting shocks through them, knees are what I call Junk. Therefore, while shopping or out and about for a long length of time, I have my best friend, my wheelchair to aid me.
I've gone through the first stage of meds, only to have them work briefly, and then not at all. On second round with Lyrica...the pain continues. Something deep inside me says there is something more going on, yet all tests come out clean. It is highly frustrating and I am ready to give up on doctors altogether. The run around is exhausting and almost a full time job. I no longer work. I couldn't last an hour if I tried. So I am researching as much as I can on Fibromyalgia. I am lucky to have a decent Dr. who is sympathetic and understanding of Fibro, but even so, when I leave the office, I know there is no care of what happens until they see me at the next visit. So learning to fight this with my husband and family has become priority.
My husband has a ministry, and he is a great support system, but he is exhausted from having to do most of the housework or constantly drive me around pulling out the wheelchair, putting it back, out again, put it back etc. He is so good to me, so I am very lucky and grateful.
My concern is that I may have something else that no one can find. I feel it in my core, yet test results are always clean. I wonder if Lyme disease is not part of this, yet the 2 blood tests I took are clean as well.
To go from being a very active individual to almost wheelchair bound is quite bothersome. So, I decided to finally join a forum. I have read through so many without joining. I believe it is time to get support and give it as well just to keep the spirits up.
So, here I am, a Wife, a Mother, a friend who struggles with chronic pain in my neck and knees daily...with spurts of attacks all over my body at random times. Who forgets things and shakes a lot. Who wears coats in the summer time while grocery shopping to escape the cold...never works and who dies of heat in the summer. This is my life. Yet I don't cry as much as I could because I know I am not alone and that there are many out there who suffer even greater than I do. So I try to stay positive and laugh a lot. Laughter truly is the best medicine! Hello to all here and I can't wait to get involved.
I've gone through the first stage of meds, only to have them work briefly, and then not at all. On second round with Lyrica...the pain continues. Something deep inside me says there is something more going on, yet all tests come out clean. It is highly frustrating and I am ready to give up on doctors altogether. The run around is exhausting and almost a full time job. I no longer work. I couldn't last an hour if I tried. So I am researching as much as I can on Fibromyalgia. I am lucky to have a decent Dr. who is sympathetic and understanding of Fibro, but even so, when I leave the office, I know there is no care of what happens until they see me at the next visit. So learning to fight this with my husband and family has become priority.
My husband has a ministry, and he is a great support system, but he is exhausted from having to do most of the housework or constantly drive me around pulling out the wheelchair, putting it back, out again, put it back etc. He is so good to me, so I am very lucky and grateful.
My concern is that I may have something else that no one can find. I feel it in my core, yet test results are always clean. I wonder if Lyme disease is not part of this, yet the 2 blood tests I took are clean as well.
To go from being a very active individual to almost wheelchair bound is quite bothersome. So, I decided to finally join a forum. I have read through so many without joining. I believe it is time to get support and give it as well just to keep the spirits up.
So, here I am, a Wife, a Mother, a friend who struggles with chronic pain in my neck and knees daily...with spurts of attacks all over my body at random times. Who forgets things and shakes a lot. Who wears coats in the summer time while grocery shopping to escape the cold...never works and who dies of heat in the summer. This is my life. Yet I don't cry as much as I could because I know I am not alone and that there are many out there who suffer even greater than I do. So I try to stay positive and laugh a lot. Laughter truly is the best medicine! Hello to all here and I can't wait to get involved.