@sureimsore- My dr did not say "limb-girdle" pain just piriformis syndrome, hip bursitis, pinched sciatica and my fav. myofascial pain. My lumbar mri showed djd, bulging discs, and lumbar Spondylolisthesis changes. If I stand for 20 mins my thighs, butt, back burn, pain on the outside of my knee when crossing legs, pain on inside of the knee (can't touch my knees together, have to use a pillow) my clothes hurt my skin on my legs, hips, butt, back, ect... pain is down to my feet, calfs, it is everywhere. If I walk pain is everywhere, if I take too wide of a stride the pain is like a metal rod from my tailbone, sometimes lower back, down to my feet, that is being electrocuted, stops me in my tracks with tears. Other times feels like lava is being poured down from my back to my feet.
It all started when my legs went completely numb for days, was afraid to use them because I couldn't feel anything, afraid I would roll an ankle and not know it. When the feeling begin to come back, the pain was horrible.