Tuba1Kenobi
Member
- Joined
- Sep 1, 2014
- Messages
- 24
- Reason
- DX FIBRO
- Diagnosis
- 04/2014
- Country
- US
- State
- CA
Hi everybody !
So recently I just got diagnosed with Fibromyalgia and low Vitamin D (which my dad also has) by my rheumatologist and im barely in my 20s which is utterly heartbreaking ;-;. It first started with when I developed this dull and elocurating back pain almost as if I had a needles on my trapezius. I told people about it and they said it was normal and try to go back to your daily life by just consuming a whole bunch of advil and try living with the pain.
So, I took their advice but I knew something was wrong. This neurlogical pain was too great to ignore; it felt worst then when I had my appendicitis ! Over the next couple months of livig with this horrific pain symptoms started to pile up. I started to develop fatigue alongside the pain and I all did was lie in bed hoping to get a decent sleep. Other symptoms that developed were: numb/pressurized nose and face (feels like I am wearing a mask that NBA players wear hen they brake their nose), numb upper teeth, weak/cracky joints, severe muscle twitching, neck pain, stiff legs, neck pain, chest pain, air hunger, blurry vision, itchy bumps that bleed, blood under toenails etc...
I dont feel like the same person I once was anymore. I spend the day in bed hoping for the pain to disappear even for a moment so I can get a decent rest. The only thing that helped 10% of the pain is my Vitamin D Rx. Im not the same person and I can feel it. Ive seen many doctors and most of them unsympathateically tell my I should immediately see a therapist when then dont even have the decency to understand me almost as Im crazy hence making me believe I have Lyme disease or Lupus.
The most disheartening part is my family and friends think Im a "a lazy, depressed person with absolutely no motivation". Why would I be making the pain and symptoms up ?! Why wouldnt I want to go live life and do things I want to do ?!? If only they can be in my shoes for one day. Is it bad to say that I want a disease like Lyme or Lupus so people can understand me? I do have a history of anxiety since I was seven but yet I feel like theres something causing it and not the other way around. I wish this pain would atleast a little bit more milder so I can get another job and start progressing with my life.
Sorry for unexpectedly venting (._.) and I know alot of you have gone through the thing. My
Lupus and other test come back in a few days and my next appt is in two months *Sigh*
Anyways thanks for reading.
So recently I just got diagnosed with Fibromyalgia and low Vitamin D (which my dad also has) by my rheumatologist and im barely in my 20s which is utterly heartbreaking ;-;. It first started with when I developed this dull and elocurating back pain almost as if I had a needles on my trapezius. I told people about it and they said it was normal and try to go back to your daily life by just consuming a whole bunch of advil and try living with the pain.
So, I took their advice but I knew something was wrong. This neurlogical pain was too great to ignore; it felt worst then when I had my appendicitis ! Over the next couple months of livig with this horrific pain symptoms started to pile up. I started to develop fatigue alongside the pain and I all did was lie in bed hoping to get a decent sleep. Other symptoms that developed were: numb/pressurized nose and face (feels like I am wearing a mask that NBA players wear hen they brake their nose), numb upper teeth, weak/cracky joints, severe muscle twitching, neck pain, stiff legs, neck pain, chest pain, air hunger, blurry vision, itchy bumps that bleed, blood under toenails etc...
I dont feel like the same person I once was anymore. I spend the day in bed hoping for the pain to disappear even for a moment so I can get a decent rest. The only thing that helped 10% of the pain is my Vitamin D Rx. Im not the same person and I can feel it. Ive seen many doctors and most of them unsympathateically tell my I should immediately see a therapist when then dont even have the decency to understand me almost as Im crazy hence making me believe I have Lyme disease or Lupus.
The most disheartening part is my family and friends think Im a "a lazy, depressed person with absolutely no motivation". Why would I be making the pain and symptoms up ?! Why wouldnt I want to go live life and do things I want to do ?!? If only they can be in my shoes for one day. Is it bad to say that I want a disease like Lyme or Lupus so people can understand me? I do have a history of anxiety since I was seven but yet I feel like theres something causing it and not the other way around. I wish this pain would atleast a little bit more milder so I can get another job and start progressing with my life.
Sorry for unexpectedly venting (._.) and I know alot of you have gone through the thing. My
Lupus and other test come back in a few days and my next appt is in two months *Sigh*
Anyways thanks for reading.