jrasted79
New member
- Joined
- Feb 5, 2015
- Messages
- 8
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
I am new here. I am sure at some point I will be given the Fibromyalgia diagnosis. I started becoming sick at age 30 when my daughter was around 4. I was a single parent from the beginning and life was great. I had a high paying job, we needed for nothing. She is my life. It kills me now that we have to survive on $515 a month and I can't do anything fun with her. I try to, we do crafts while I sit in bed, I am teaching her how to sew. We take small walks.
I have a very hard time walking. I can't even make it through the grocery store. I have horrible fatigue and I can't retain any new information which makes college very hard. I kill myself going to school full-time because I need the grant money to survive. I do get assistance through ACCESS (disabled student program) I have been denied 3 times for disability. I am under the care of a neurologist but he referred me to pain management to "diagnose my chronic pain condition" I am on a waiting list but I just noticed the insurance approval expires in March and the office said I wouldn't be able to get in until April at best. The other problem is that the office is 2 hours away. It is the closest one they had. I fear if they make me do physical therapy, that I won't be able to drive home.
I've been tossed around many different specialist since the pain started. One doctor even put malingering (lying about symptoms) in my medical record. I have been scolded, yelled at, and lied to by doctors.
I have been through a few traumatic events in my life and I suffer from PTSD. Now I suffer from major depressive disorder as well. but lately the depression is so bad. I hate my life, I feel like a failure, I feel like half a person. The last denial from an Adminstrative Law Judge from disability was very rough. He accused me of all sorts of things. Now my case has been sent to the appellate court. If I had disability I wouldn't have to kill myself for school, and I could take care of us with less worry.
I don't really have a point in writing this, I just need to vent.
Well maybe I have one question. Does any one have joints that swell? If I walk too much my ankles and feet swell like crazy. So do my fingers if I type or sew too much.
Here is my normal foot
here are my swollen feet.
I have a very hard time walking. I can't even make it through the grocery store. I have horrible fatigue and I can't retain any new information which makes college very hard. I kill myself going to school full-time because I need the grant money to survive. I do get assistance through ACCESS (disabled student program) I have been denied 3 times for disability. I am under the care of a neurologist but he referred me to pain management to "diagnose my chronic pain condition" I am on a waiting list but I just noticed the insurance approval expires in March and the office said I wouldn't be able to get in until April at best. The other problem is that the office is 2 hours away. It is the closest one they had. I fear if they make me do physical therapy, that I won't be able to drive home.
I've been tossed around many different specialist since the pain started. One doctor even put malingering (lying about symptoms) in my medical record. I have been scolded, yelled at, and lied to by doctors.
I have been through a few traumatic events in my life and I suffer from PTSD. Now I suffer from major depressive disorder as well. but lately the depression is so bad. I hate my life, I feel like a failure, I feel like half a person. The last denial from an Adminstrative Law Judge from disability was very rough. He accused me of all sorts of things. Now my case has been sent to the appellate court. If I had disability I wouldn't have to kill myself for school, and I could take care of us with less worry.
I don't really have a point in writing this, I just need to vent.
Well maybe I have one question. Does any one have joints that swell? If I walk too much my ankles and feet swell like crazy. So do my fingers if I type or sew too much.
Here is my normal foot
here are my swollen feet.
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