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srhcox1

Member
Joined
Mar 24, 2015
Messages
26
Reason
DX FIBRO
Diagnosis
01/2001
Country
US
State
nc
I recently had a nerve test done. They start by sending electrical currents throe different nerves. Then they use needles to observe muscle reactivity.
On a normal person this is not such a big deal. On anFMS patient...this was torture.
Each electrical current was the same feeling as hitting ur funny bone. Do that 30 times and see how it feels.
Then they poke long thin needles in different muscles and tell how to move the muscle while the needle is in place. Was fighting back tears... Then she poked my calf muscle and my whole body locked up.
I couldn't move or even speak. The pain went all the way up my back. My mother in law(thank God for her) helped me to sit up. When did I bawled like a baby.
I'd have to say that was the worse pain I've ever experienced (and that's saying a lot)
This test was recommended by a neurologist. Who then confirmed that I needed to seek help for my chronic pain issues (data).

Moral of the story....don't ever have a nerve function orEMG done if u have FMS...
 
That sounded horrific! I've had several nerve tests, from my feet, up my leg, and I've had them for my neck and shoulders for migraines too. While they are extremely uncomfortable/borderline painful, I didn't have the same reaction as you did. I wonder if whoever did yours knew what they were doing. My guy was very gentle....I'm sorry you had such an awful experience...
 
srhcox1,
Im so sorry you had to go through that. i too had a very bad experience with that test. the long thin needle they used broke off in the hand. the nurse said wow thats never happened before. she called the doctor in to see it and remove it. once it was removed the doctor took over the test. hurt like hell and he told me he would have to continue the test and place another needle in that hand again. i was young and didnt know any better to say no thanks or no way.(23)

The EEG cap had stainless steel in it. it did something to my nerves on my head.burned like hell and lighting bolts all over my head non stop through the test. crying the whole time. doctors said never seen anything like that. should have been no pain at all. for two months, the water hitting my head in the shower made me cry. the towel and brush were the same. to this day i still have the pain on my skin on my head. at this point i think the pain im having now is the lupus attacking my head from the test. My wife still keeps me from suing that man. why? because he cares about my treatment and has offered help with other doctors i have seen. so as i need her understanding, i dont sue the man.

Hang in there we all have different reactions to the tests. i hope you get to feeling better soon from your test.
 
Thank u for your understanding comments. I'm glad to know that its not just me.
Went on trip today with the kids. Bout a 3 hr trip. Even though it was broken up by pit stops... It was hard to get out of my seat. My right hip hurt so bad I could hardly lift it. Never though I would even consider using a cane at my age...but after today?
Thinks will settle soon and I'll be seeking a pain specialist.
Brighter days a ahead. Will forge on.
Thanks again.
 
the can is a great idea, there i times i have to use one or even a walker. im 52 yrs old. if it helps me then im doing it. and i dont let it stop me from going out of the house. stay strong. you can do this!
 
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