1sweed
Moderator
- Joined
- Feb 4, 2013
- Messages
- 1,956
- Reason
- DX FIBRO
- Diagnosis
- 01/1995
- Country
- US
- State
- PA
As you might know I have been on here quite some time sharing my advice and life with fibromyalgia with all of you. I got my SSD in 2007, and up until this year they never once contacted me concerning rechecking for eligibility, that is until I got a part time job this year.
I came home one day to discover a call from SS on my phone asking about the fact I was working and even though I had called them when I first started working and told them about the company that hired me, they had no record of employment for me. Meaning the company which had been taking social security and medicare taxes out of my pay check had not sent them in or had not reported the earnings, or it was just a scare tactic to get me to round up my records pay stubs, make copies and send them to the local office.
I called them back right away trying to figure out what was going on and got a short tempered woman who wanted my pay stubs, as well as, all the income I had received from the year where they retrograded my first payments from, this being 2002. Oh, and get all this information back to her in 15 days or I could lose my disability.
I have to admit I was scared. I did not even know if I still had my records going back that far. Luckily I still had my tax returns for my back years and was able to put all the pay and records together. But then on top of that was the forms to fill out which as you know are demanding and confusing. I was in tears most of the time writing and explaining why I had to get a part-time job and that my condition was not much improved since I got my disability and that my new boss was very understanding of my handicaps.
Got it off in the mail and started hoping and praying it would be okay. But then I got a really bad pain in the eye I just had major surgery on and saw a shower of floaters in my vision. I got a appointment with my eye doctor and everything seemed to check out okay so far. Then I got a severe headache with the eye pain, along with bad chest pain and leg pain all on my left side. Went to my doctor office and they sent me to the local hospital ER.
Ran lots of tests including a ct-scan of my head (which found nothing up there). lol bit of humor, all tests were normal. So they said muscle strain. It was then I finally realized it was the begining of a flare and the pain was horrible. But other than another eye appointment tomorrow, I am going to buckle down and ride it out.
This is what I often have talked about in saying how much mental stress can increase our symptoms and make our mental and physical condition turn from good to bad overnight.
Right now I still have headache, eye pain, and chest pain and I wonder what is coming next. I have not had a major flare for over 5 years, (just little ones) and had forgotten how things move around and take you by surprise. I know I will make it though this.
Just pay attention to what I have shared about the SSD. Keep your back tax records on any money you have earned since and before you got your disability and keep them where you can find them quickly.
Thanks for reading and know even though I don't post as often I still come onsite and read and listen to all your struggles and feel your pain.
I came home one day to discover a call from SS on my phone asking about the fact I was working and even though I had called them when I first started working and told them about the company that hired me, they had no record of employment for me. Meaning the company which had been taking social security and medicare taxes out of my pay check had not sent them in or had not reported the earnings, or it was just a scare tactic to get me to round up my records pay stubs, make copies and send them to the local office.
I called them back right away trying to figure out what was going on and got a short tempered woman who wanted my pay stubs, as well as, all the income I had received from the year where they retrograded my first payments from, this being 2002. Oh, and get all this information back to her in 15 days or I could lose my disability.
I have to admit I was scared. I did not even know if I still had my records going back that far. Luckily I still had my tax returns for my back years and was able to put all the pay and records together. But then on top of that was the forms to fill out which as you know are demanding and confusing. I was in tears most of the time writing and explaining why I had to get a part-time job and that my condition was not much improved since I got my disability and that my new boss was very understanding of my handicaps.
Got it off in the mail and started hoping and praying it would be okay. But then I got a really bad pain in the eye I just had major surgery on and saw a shower of floaters in my vision. I got a appointment with my eye doctor and everything seemed to check out okay so far. Then I got a severe headache with the eye pain, along with bad chest pain and leg pain all on my left side. Went to my doctor office and they sent me to the local hospital ER.
Ran lots of tests including a ct-scan of my head (which found nothing up there). lol bit of humor, all tests were normal. So they said muscle strain. It was then I finally realized it was the begining of a flare and the pain was horrible. But other than another eye appointment tomorrow, I am going to buckle down and ride it out.
This is what I often have talked about in saying how much mental stress can increase our symptoms and make our mental and physical condition turn from good to bad overnight.
Right now I still have headache, eye pain, and chest pain and I wonder what is coming next. I have not had a major flare for over 5 years, (just little ones) and had forgotten how things move around and take you by surprise. I know I will make it though this.
Just pay attention to what I have shared about the SSD. Keep your back tax records on any money you have earned since and before you got your disability and keep them where you can find them quickly.
Thanks for reading and know even though I don't post as often I still come onsite and read and listen to all your struggles and feel your pain.