Old 11-13-2013, 10:47 AM #1
MizzDeeDee's Avatar
MizzDeeDee MizzDeeDee is offline
Member
Registered Member
 
Join Date: 2013
Posts: 129
MizzDeeDee is on a distinguished road
MizzDeeDee MizzDeeDee is offline
Member
Registered Member
MizzDeeDee's Avatar
Join Date: 2013
City: Mineral
State: Va
Country: us
Diagnosed: 01/2009
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 129
MizzDeeDee is on a distinguished road
Default Vent about new pain :(

I'm having some real neurological problems. It first started sometime ago with me taking a nap with my daughter and waking up to my knees being numb. Then it was my knees being numb, and my left thigh numb. This is in addition to my normal aches and pains. Last night, I was in so much pain that I couldn't sleep. My left side of my lower back, down my hip, down the left side of my thigh, down my knee, down my calf into my feet, the bottom of the foot, and my toes were aching. I couldn't go to sleep, and I couldn't get comfortable.

Thankfully, it doesn't hurt today...but holy cow! I'm going to see a Doctor on Friday anyway, so I'll discuss it then. I called my dad because he has fibro and arthritis too, but he said he's never had that. Just venting..it doesn't help that I got my period this morning, which causes more inflammation. That might have something to do with it, but still not normal. I expect some flaring and discomfort during or around my period, but nothing like this.

My knees still hurt, though. I'm just so aggravated and tired.
MizzDeeDee is offline  
Old 11-15-2013, 02:47 PM #2
trayne91's Avatar
trayne91 trayne91 is offline
Member
Registered Member
 
Join Date: 2013
Posts: 154
trayne91 is on a distinguished road
trayne91 trayne91 is offline
Member
Registered Member
trayne91's Avatar
Join Date: 2013
City: Lake Geneva
State: Wisconsin
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 154
trayne91 is on a distinguished road
Default Re: Vent about new pain :(

So sorry to hear you're having problems like that. I don't know how to help you, but wish I could. I've had weird things, too. Maybe it's the weather? I don't know. My thumb had a pain run through it and I couldn't even move it. It hurt like someone slicing it open with a knife and then putting electricity through it. I've had a lot of stinging all over on and just under the skin, too. Feels like snake bites kind of. Glad it doesn't hurt today and hopefully you can get a good nights sleep tonight. Take a nap if you can.
trayne91 is offline  
Old 11-16-2013, 11:28 AM #3
jcairns82 jcairns82 is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2013
Posts: 82
jcairns82 is on a distinguished road
jcairns82 jcairns82 is offline
New Member (Say Hi)
Registered Member
Join Date: 2013
City: Fenelon Falls
State: Canada
Country: Ca
Diagnosed: 02/1993
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 82
jcairns82 is on a distinguished road
Default Re: Vent about new pain :(

Thought I'd check in to see how the doctor's appointment went yesterday. I certainly have my good and bad days; however, this seems like an extreme amount of new pain to occur all at once. I hope that you got some answers or the doctor order some tests.
jcairns82 is offline  
Old 11-16-2013, 09:16 PM #4
MizzDeeDee's Avatar
MizzDeeDee MizzDeeDee is offline
Member
Registered Member
 
Join Date: 2013
Posts: 129
MizzDeeDee is on a distinguished road
MizzDeeDee MizzDeeDee is offline
Member
Registered Member
MizzDeeDee's Avatar
Join Date: 2013
City: Mineral
State: Va
Country: us
Diagnosed: 01/2009
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 129
MizzDeeDee is on a distinguished road
Default Re: Vent about new pain :(

Quote:
Originally Posted by jcairns82 View Post
Thought I'd check in to see how the doctor's appointment went yesterday. I certainly have my good and bad days; however, this seems like an extreme amount of new pain to occur all at once. I hope that you got some answers or the doctor order some tests.
*Sigh*

Well, I had to cancel because I had no one to help me with my kid (she's two). My mother couldn't get here in time, and my fiance was afraid to take off work. He's afraid they'll be mad at him if he takes off to help me or our daughter, which I think is ridiculous of him to think that. I can't bring her in there, she is crazy hyper. I'd be running after her the whole time.

So, I'm going to have to reschedule. This will be the 2nd time I've had to cancel a doctor's appointment in two months. Luckily, my mother said she would watch her, but I'm going to have to drive her over there, which is 30 minutes away. I could have her come over here, but she isn't very mobile, and she can't get over the baby gates. I also need fasting blood work done, so I'm going to have to not eat for several hours during the day to get the blood work. Getting in there at 9 a.m. with my daughter doesn't seem feasible.

I'm not going to lie, I'm more than a little annoyed. I think I really need to get in there, but I'm not getting the support I need to do it. I appreciate you asking, though . It's nice to know that people do care. I feel like I'm not being taken seriously right now, and they should know better. We've been down this road before, and there was something wrong.
MizzDeeDee is offline  
Old 11-19-2013, 10:42 PM #5
Trellum's Avatar
Trellum Trellum is offline
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,788
Trellum is on a distinguished road
Trellum Trellum is offline
Very Helpful Member
Registered Member
Trellum's Avatar
Join Date: 2013
City: NL
State: NL
Country: NL
Diagnosed: 04/2011
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,788
Trellum is on a distinguished road
Default Re: Vent about new pain :(

Sorry to hear you had to cancel your appointment Your pain sounds like a really tough one. It seems women with fibro have the worst part! I can relate to the way you feel, I'm also not getting enough support from my family and boyfriend I guess we just have to live with it! I try not to take it too personal, because if I do I'd end up feeling way worse. I hope you can find answers to your new aches soon. Best of luck!
Trellum is offline  
Old 11-21-2013, 09:56 PM #6
MizzDeeDee's Avatar
MizzDeeDee MizzDeeDee is offline
Member
Registered Member
 
Join Date: 2013
Posts: 129
MizzDeeDee is on a distinguished road
MizzDeeDee MizzDeeDee is offline
Member
Registered Member
MizzDeeDee's Avatar
Join Date: 2013
City: Mineral
State: Va
Country: us
Diagnosed: 01/2009
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 129
MizzDeeDee is on a distinguished road
Default Re: Vent about new pain :(

Quote:
Originally Posted by Trellum View Post
Sorry to hear you had to cancel your appointment Your pain sounds like a really tough one. It seems women with fibro have the worst part! I can relate to the way you feel, I'm also not getting enough support from my family and boyfriend I guess we just have to live with it! I try not to take it too personal, because if I do I'd end up feeling way worse. I hope you can find answers to your new aches soon. Best of luck!
Thank you for that! I'm sure it isn't that they don't believe me as much as what they see and what I say conflict. It's the old "she looks okay, so she must be okay" sort of thing.

Maybe I can get in within the next few weeks. I'm not setting it up though if I'm not 100% sure that I can get in. I'm not going to keep setting things up to only be cancelled.
MizzDeeDee is offline  
Old 11-21-2013, 09:58 PM #7
Trellum's Avatar
Trellum Trellum is offline
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,788
Trellum is on a distinguished road
Trellum Trellum is offline
Very Helpful Member
Registered Member
Trellum's Avatar
Join Date: 2013
City: NL
State: NL
Country: NL
Diagnosed: 04/2011
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,788
Trellum is on a distinguished road
Default Re: Vent about new pain :(

Yeah, ugh. A lot people assume I'm ok because I ''look'' ok! If wish they stopped to assume things! But oh well, people will never change I guess we must learn to deal with that, no matter how hard it is I hope everything goes well for you Next week I'll have to go to 3 different doctors... wooot! LOL, not my fav time of the year!
Trellum is offline  
Old 11-23-2013, 04:46 PM #8
Tuppence Tuppence is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2013
Posts: 15
Tuppence is on a distinguished road
Tuppence Tuppence is offline
New Member (Say Hi)
Registered Member
Join Date: 2013
City: Would Rather Not Say
State: Would Rather Not Say
Country: UK
Interest: I am in the process of being diagnosed with FIBRO/CFS/PAIN
Posts: 15
Tuppence is on a distinguished road
Default Re: Vent about new pain :(

I hope you can get a new appointment soon, it must be so frustrating and also worrying. Maybe you could make the appointment when your mum or fiancÚ is there so they can say if the time that is offered suits them or not? My mum makes my appointments for me which I'm not happy about as I don't want her to go with me but so far it's always been easy finding a time that suits both of us.
Tuppence is offline  
Old 11-24-2013, 11:36 AM #9
nascarmike nascarmike is offline
Member
Registered Member
 
Join Date: 2013
Posts: 227
nascarmike is on a distinguished road
nascarmike nascarmike is offline
Member
Registered Member
Join Date: 2013
City: warwick
State: rhode island
Country: US
Diagnosed: 06/2013
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 227
nascarmike is on a distinguished road
Default Re: Vent about new pain :(

MizzDeeDee even guys go through it. I have relatives who are great at that, I don't even waste my breath anymore. Total sympathy on having to take your girl to the dr.'s been there done that. Keep you chin up and focus on the good things. Best of wishes to you.
nascarmike is offline  
Old 11-24-2013, 04:29 PM #10
1sweed's Avatar
1sweed 1sweed is offline
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,956
1sweed has a spectacular aura about1sweed has a spectacular aura about
1sweed 1sweed is offline
Very Helpful Member
Registered Member
1sweed's Avatar
Join Date: 2013
City: *****
State: Pennsylvania
Country: US
Diagnosed: 01/1995
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,956
1sweed has a spectacular aura about1sweed has a spectacular aura about
Default Re: Vent about new pain :(

So sorry to hear you had to cancel your appointment. I know how tough it is getting help from family members who don't understand fibro. I hope you can work something out soon. Do you have any friends or neighbors, that you could trust to watch your little one? I also understand your not wanting to do all that extra running around and driving. Some days I hate the thought of driving and get really irrated when I have to repeatedly do errands for other family members.

It is good that your mom is trying to be helpful and that your fiance is attempting some support. We all have days when we want to help, but life or work gets in the way or we feel intimidated by the boss. Jobs are hard to keep these days with all the changes in government and insurance, so I would try to understand his fear of upsetting the boss and possible job loss.

I hope things work out and you get to that doctor. Good Luck! Try to have a good day.
__________________
Let not your heart be troubled, much better days lie ahead for all of us.
1sweed is offline  
Old 11-25-2013, 09:26 AM #11
mariposa's Avatar
mariposa mariposa is offline
Member
Registered Member
 
Join Date: 2013
Posts: 460
mariposa is on a distinguished road
mariposa mariposa is offline
Member
Registered Member
mariposa's Avatar
Join Date: 2013
City: ???
State: PA
Country: USA
Interest: 1 close relative, 2 friends, I want to help them
Posts: 460
mariposa is on a distinguished road
Default Re: Vent about new pain :(

I hope that you'll soon be able to reschedule that doctor appointment... I see that you had to cancel.

In the meantime, did the knee issue continue for you or resolve? I hope it was just a one-time thing and is better by now.
mariposa is offline  
Old 11-25-2013, 07:33 PM #12
trayne91's Avatar
trayne91 trayne91 is offline
Member
Registered Member
 
Join Date: 2013
Posts: 154
trayne91 is on a distinguished road
trayne91 trayne91 is offline
Member
Registered Member
trayne91's Avatar
Join Date: 2013
City: Lake Geneva
State: Wisconsin
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 154
trayne91 is on a distinguished road
Default Re: Vent about new pain :(

Just wanted to pop in and say I hope you are feeling better.
trayne91 is offline  
Old 11-26-2013, 09:17 PM #13
MizzDeeDee's Avatar
MizzDeeDee MizzDeeDee is offline
Member
Registered Member
 
Join Date: 2013
Posts: 129
MizzDeeDee is on a distinguished road
MizzDeeDee MizzDeeDee is offline
Member
Registered Member
MizzDeeDee's Avatar
Join Date: 2013
City: Mineral
State: Va
Country: us
Diagnosed: 01/2009
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 129
MizzDeeDee is on a distinguished road
Default Re: Vent about new pain :(

Hey, I just saw all these replies.. thanks guys! I have not got back in yet. To add insult to injury...our car broke down! It should be fixed this week, and then I'm going to try and set something up before Christmas.

I don't really have anyone that could watch her besides mom and my fiance. His parents are across the street, but they are always out doing something or watching/raising the other brother's kid, so it would be hard. His aunt lives behind us, and she would be pleased as punch to watch my daughter. She's just in her 70s, and my daughter is hyper. I don't know if I want to have her deal with that...I would feel bad. I know the one nephew is far less active than my daughter, and that wears her out.

I know I'll get there soon.. it's just SO frustrating.
MizzDeeDee is offline  
Old 12-01-2013, 09:51 PM #14
Trellum's Avatar
Trellum Trellum is offline
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,788
Trellum is on a distinguished road
Trellum Trellum is offline
Very Helpful Member
Registered Member
Trellum's Avatar
Join Date: 2013
City: NL
State: NL
Country: NL
Diagnosed: 04/2011
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,788
Trellum is on a distinguished road
Default Re: Vent about new pain :(

Woah, it sounds like you're going tru a really tough time I sincerely hope things get much better soon! Life comes with a lot ups and downs and we all know it, but is so annyoing having to deal with them!
Trellum is offline  
Old 12-02-2013, 08:56 AM #15
sassy13's Avatar
sassy13 sassy13 is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2013
Posts: 51
sassy13 is on a distinguished road
sassy13 sassy13 is offline
New Member (Say Hi)
Registered Member
sassy13's Avatar
Join Date: 2013
City: Chattanooga
State: Tennessee
Country: USA
Diagnosed: 06/2011
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 51
sassy13 is on a distinguished road
Default Re: Vent about new pain :(

Quote:
Originally Posted by MizzDeeDee View Post
Thank you for that! I'm sure it isn't that they don't believe me as much as what they see and what I say conflict. It's the old "she looks okay, so she must be okay" sort of thing.

Maybe I can get in within the next few weeks. I'm not setting it up though if I'm not 100% sure that I can get in. I'm not going to keep setting things up to only be cancelled.
I hate that "she looks ok so she must be ok"! Looks can be deceiving! I read on Pinterest the top ten things NOT to say to a person with a chronic illness, and that was one of them! "Well, you look good!" Aaarrrgggg!
Sorry just a little rant!
sassy13 is offline  
Closed Thread

Tags
back, comfortable, dad, doctor, feet, hip, night, pain, sleep, vent, venting


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Similar Threads
Thread Thread Starter Forum Replies Last Post
need to vent nascarmike Moan, Complain and Vent 5 11-15-2013 02:43 PM
Just need to vent...... katydid Moan, Complain and Vent 5 09-27-2013 03:30 PM
Need to vent hudda32 Moan, Complain and Vent 1 07-03-2013 07:01 PM
My turn to vent. Yatte Moan, Complain and Vent 13 04-30-2013 03:02 PM
Need to Vent Indianagal Chronic Pain 14 03-21-2013 10:21 AM

 
All times are GMT -5. The time now is 03:04 PM.
Copyright © 2017