SandySea
New member
- Joined
- Jan 15, 2014
- Messages
- 1
- Reason
- DX FIBRO
- Diagnosis
- 11/2013
- Country
- US
- State
- FL
Hi Everyone,
This is my first post, and proofreading it I see I've been a bit long winded. Even so I hope some of you will read it and feel a connection. I'm looking forward myself to delving into this site for fellowship and ideas and help dealing with this disease.
I'm "SandySea" from Florida, otherwise known as Marty. I may have been suffering from fibromyalgia for years, but undiagnosed. Since my symptoms have started to worsen in the past year or so, I finally went for help.
For years I thought I had a thyroid problem, but not according to blood tests. So when my symptoms took a turn into exhaustion, and breathlessness when I walked up a flight of stairs I got concerned, I went to my PCP who was concerned about these symptoms and my rapid heartbeat. He sent me for chest X-rays and an echocardiogram for suspected heart problems. When they came back normal, he sent to a rheumatologist.
He diagnosed fibromyalgia (that pressure point in my right hip still hurts from his prodding) in November 2012.
I also thought my symptoms were due to aging and menopause. Here are my most bothersome symptoms:
Every week or so I experience a night where I stay wide awake for 36 to 48 hours at a stretch. With no need for daytime naps.
Standing around caused me to feel exhausted run to the closest chair. Showering was a problem and had to be done quickly. I quit my yoga practice because it became grueling and too much exhausting work.
Also, my muscles feel difficult to stretch. It's noticeable when I do anything physical, even getting up out of bed and walking to the bathroom every morning. Especially my quadriceps - I thought it odd that stepping up on a curb from the street felt a little difficult. Sometimes I'd get exhausted and lightheaded climbing only one flight of stairs.
I was treated for depression and anxiety after an emotional traumatic event 25 years ago which left my body in severe pain for two years, settling in my rotator cuff. In 1989 I never heard of FM. This was when it started, perhaps?
I have no short term memory. Very humiliating when arguing with my husband. Fibro Fog? But very serious and scary. I also forget simple names for things or people when speaking.
Even though I'm a vegetarian, mainly eating fruit, greens and beans, bad constipation.
And maybe NOT due to fibromyalgia?, the bane of my life since early childhood, mouth ulcers. Multiple, extremely painful, continuous with flu-like symptoms of fever and aches all over that sends me to bed for a day or two. (Thermometer shows normal or below normal temp)
Feeling guilt and shame that others think I'm lazy and uninterested when I'm too tired to do anything. I also tend to think this way which is worse.
What I'm doing now? Fight it!:
Diet changes, no salt, no sugar, no dairy or GMO. Organic. I force myself to drink the 8 recommended glasses of filtered water a day
I've thrown myself into a total exercise routine to build up stamina and hopefully well being. 5-6 days of body building and treadmill at the gym. I feel the best after 30 min on the treadmill, but oh so hard to force myself to leave the house every day.
3 days a week of intense yoga, 1 1/2 hours. Some poses are especially hard, standing poses and especially, any pose stretching my tight hamstrings and quadriceps.
Looking into a specialist here in Central FL that believes "stealth viruses" are the cause. (Dr. Daniel Dantini) I do feel virus-like symptoms from time to time.
Looking for a support group in my area to attend.
Researching. (Brain scans in the news, lately, providing new insight)
Sorry this is so long. I'd especially like to hear from anyone who also suffers from debilitating mouth ulcers. Signing off, Marty
This is my first post, and proofreading it I see I've been a bit long winded. Even so I hope some of you will read it and feel a connection. I'm looking forward myself to delving into this site for fellowship and ideas and help dealing with this disease.
I'm "SandySea" from Florida, otherwise known as Marty. I may have been suffering from fibromyalgia for years, but undiagnosed. Since my symptoms have started to worsen in the past year or so, I finally went for help.
For years I thought I had a thyroid problem, but not according to blood tests. So when my symptoms took a turn into exhaustion, and breathlessness when I walked up a flight of stairs I got concerned, I went to my PCP who was concerned about these symptoms and my rapid heartbeat. He sent me for chest X-rays and an echocardiogram for suspected heart problems. When they came back normal, he sent to a rheumatologist.
He diagnosed fibromyalgia (that pressure point in my right hip still hurts from his prodding) in November 2012.
I also thought my symptoms were due to aging and menopause. Here are my most bothersome symptoms:
Every week or so I experience a night where I stay wide awake for 36 to 48 hours at a stretch. With no need for daytime naps.
Standing around caused me to feel exhausted run to the closest chair. Showering was a problem and had to be done quickly. I quit my yoga practice because it became grueling and too much exhausting work.
Also, my muscles feel difficult to stretch. It's noticeable when I do anything physical, even getting up out of bed and walking to the bathroom every morning. Especially my quadriceps - I thought it odd that stepping up on a curb from the street felt a little difficult. Sometimes I'd get exhausted and lightheaded climbing only one flight of stairs.
I was treated for depression and anxiety after an emotional traumatic event 25 years ago which left my body in severe pain for two years, settling in my rotator cuff. In 1989 I never heard of FM. This was when it started, perhaps?
I have no short term memory. Very humiliating when arguing with my husband. Fibro Fog? But very serious and scary. I also forget simple names for things or people when speaking.
Even though I'm a vegetarian, mainly eating fruit, greens and beans, bad constipation.
And maybe NOT due to fibromyalgia?, the bane of my life since early childhood, mouth ulcers. Multiple, extremely painful, continuous with flu-like symptoms of fever and aches all over that sends me to bed for a day or two. (Thermometer shows normal or below normal temp)
Feeling guilt and shame that others think I'm lazy and uninterested when I'm too tired to do anything. I also tend to think this way which is worse.
What I'm doing now? Fight it!:
Diet changes, no salt, no sugar, no dairy or GMO. Organic. I force myself to drink the 8 recommended glasses of filtered water a day
I've thrown myself into a total exercise routine to build up stamina and hopefully well being. 5-6 days of body building and treadmill at the gym. I feel the best after 30 min on the treadmill, but oh so hard to force myself to leave the house every day.
3 days a week of intense yoga, 1 1/2 hours. Some poses are especially hard, standing poses and especially, any pose stretching my tight hamstrings and quadriceps.
Looking into a specialist here in Central FL that believes "stealth viruses" are the cause. (Dr. Daniel Dantini) I do feel virus-like symptoms from time to time.
Looking for a support group in my area to attend.
Researching. (Brain scans in the news, lately, providing new insight)
Sorry this is so long. I'd especially like to hear from anyone who also suffers from debilitating mouth ulcers. Signing off, Marty