Hi All,
I wanted to share a few things with the forum that I hope will help even 1 person. This is truly a frustrating condition for patients and doctors with very little relief and no magic pill.
First, a few things that have helped the pain, meds don't seem to work on me at least. Getting into the pool has worked the best, everyday if possible. keep moving throughout the day and the pain seems to hold off until you stop of course. I also use a Tens machine and just started with Lidocaine Patches, also a temp relief. Trigger point shots work great but you can't have them too much and in only a few spots at a time.
Second, it is possible to get Disability without years of fighting. You must have extensive records over a decent length of time and show that you have tried to work. The more thorough and detailed you complete the forms, the better. I was diagnosed over 10 years ago but my condition has just advanced beyond my control. I worked on and off and tried lots of treatments and doctors, luckily I kept all my records and provided a detailed summary of my condition and impact on my daily life.
Diet does help a bit, I just started a daily homemade green juice using my cheap blender and i feel the surge immediately of energy. (I also have CFS). I was not up to buying some expensive machine and found out that I don't have to, I use veggies and fruit. I also try and get more fish and make healthy choices but when your stuck at home alot, its hard to behave. At least the green juice is helping
One more thing, after seeing lost of doctors over the years, only recently did 2 of them mention getting a sleep test for sleep apnea, this is definitely overlooked and can cause pain as well as fatigue. I wish I knew this years ago.....
that's it for now, I hope we all feel better soon!
I wanted to share a few things with the forum that I hope will help even 1 person. This is truly a frustrating condition for patients and doctors with very little relief and no magic pill.
First, a few things that have helped the pain, meds don't seem to work on me at least. Getting into the pool has worked the best, everyday if possible. keep moving throughout the day and the pain seems to hold off until you stop of course. I also use a Tens machine and just started with Lidocaine Patches, also a temp relief. Trigger point shots work great but you can't have them too much and in only a few spots at a time.
Second, it is possible to get Disability without years of fighting. You must have extensive records over a decent length of time and show that you have tried to work. The more thorough and detailed you complete the forms, the better. I was diagnosed over 10 years ago but my condition has just advanced beyond my control. I worked on and off and tried lots of treatments and doctors, luckily I kept all my records and provided a detailed summary of my condition and impact on my daily life.
Diet does help a bit, I just started a daily homemade green juice using my cheap blender and i feel the surge immediately of energy. (I also have CFS). I was not up to buying some expensive machine and found out that I don't have to, I use veggies and fruit. I also try and get more fish and make healthy choices but when your stuck at home alot, its hard to behave. At least the green juice is helping
One more thing, after seeing lost of doctors over the years, only recently did 2 of them mention getting a sleep test for sleep apnea, this is definitely overlooked and can cause pain as well as fatigue. I wish I knew this years ago.....
that's it for now, I hope we all feel better soon!
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