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Fibroman

New member
Joined
Aug 27, 2014
Messages
3
Reason
DX FIBRO
Diagnosis
07/2014
Country
US
State
NC
I am a 43 yo male who has been sick for about 5 years,my symptom range from headaches near the back of my skull it then runs down my neck[ some days my neck feels swollen these days my arms hurt badly} it radiates down my left arm with muscle spasms and cramps,my right arm it runs all the way down to my fingers,this arm has the most muscle lose and my elbow pops loud and sends pains up and down arm,my forearm is tight and is constantly in pain when you move it,I went from being able to lift 70lbs to about 8lbs in 8 months,both arms will go numb and occasionally get tingling in fingers,moving from there go down the spine and the pain starts in lower back and radiates thru hips,this area is very pain full and between back and hips it limits my walking distances because of pain moving from there down both legs the right one being the worst,my whole right side is smaller than left and have gaited walk,I walk with a cane now all my joints hrt everyday and I can't ride in a car for long distances or bumpy roads my feet and legs go numb and I have a tingling sensation running thru them as I am writing this,at night I have restless leg syndrome and sleep seems like a dream that I would like to experience, evey movement in bed seems to wake me because of the pain,after rest I wake up to the pain so I feel like I have been in a bad nightmare that hasn't ended,I am having cognitive problems,severe fatigue during daytime and blurry vision,I have not drove in 12 weeks and should have probably stopped long before that,I am experiencing cramps in my abdominal area and muscle spasms,I have tremors in my arms and neck that causes them to shake like Parkinson's, but that was ruled out,one of my doctors told me the fibro might have been triggered by some tramatic event but the only thing I have had done is an epidural spinal injection about 4 years ago that didn't go very well I have been recommended to go see a phycotherapist to help me cope with having to live this way,I am on a multitude ofpills everyday and have had to quit working because everyday is a new adve ture of what is going to hurt or wat is not going to work sometimes starring off into space because I cant get the brain to get onboard for the day,of late I have been depressed and that is something I try not to experience much-- Is there someone out there experiencing this same thing a d withll it ever bet better
 
So sorry to hear of all your pain...What you are having with the brain they call brain fog, common in fibro, many
of the symptoms you mention are classic for fibro. After so many tests, doctors, specialists etc. MRI's, X-ray
because I was unaware of all the ramifications of fibro, it actually feels good to know what I am experiencing,
is common for fibro patients. L am going to a pan management clinic now after having this for 30 yrs or so. The past 5 yrs it has kept getting worse and worse.
I am not on Gapapentin, which is a nerve med. and am on a pain patch too. If you have insurance to cover it, this is a good way
to go. They answer the questions you have and then you go on a program intended to get your pain to a level where you can
function reasonably well. So far I am pleased with the progress. Sleeping better, and in the am I used to feel like i got hit by
a mac truck, that is better, but I still have muscle spasms, not regularly, I would take a muscle relaxant but it would cause
bowel problems, I have Crohns and so the bowel would also relax causing problems...that I'll have to solve. I might just use a
muscle relaxant only for the time I am in the spasms, face the bowel problem head on. It would be better than the pain...hey, I could
buy depends or some such for that time...sorry to be so graphic...
Good luck and keep writing it does you good and it does others good too.
 
I am sorry to hear of your pain and everything that you have been going through. Obviously everybody is very different indeed, but the general rule is that once you begin to understand your condition and what it means for you, things can begin to slowly get better. It is important that you work alongside a medical team so that you have people around you all of the time who can give you the advice that you need to make your condition as manageable as you possibly can. Writing and sharing your story on here is a good thing to do, as it can make you realise that you're absolutely not alone, and that there are a lot of other people who are going through the same thing as you.
 
thank you for the reply,of is comforting to actually hear from people experiencing the same symptoms, I appreciate the response and look forward to conversing with ya'll some more thank you and have a good day
 
So sorry to hear you are going thru this. I'm experiencing similar issues with my left leg and arm, but isn't so bad most of the time. I'm glad to hear you are trying to learn how to live this way. Btw... Those spasms in your belly area, are you sure that's not IBS related? I get the exact same thing once or twice a year. It's mostly caused by my IBS. Anyway, I just wanted you to know you are not alone in this. Best of luck with everything!
 
I am sorry to hear your case and thank you for taking the time to share your situation here. I have heard many symptoms like yours and always encounters different symptoms. You are not alone, here there are many people like you. Nice day.
 
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