Akshunhiro
Member
- Joined
- Jun 21, 2017
- Messages
- 16
- Reason
- DX FIBRO
- Diagnosis
- 04/2012
- Country
- AU
- State
- NSW
Oh man. I am so over it. I can't seem to find a position to lie or sit in that doesn't involve pain at the moment. I don't just have fibro. I also have ankylosing spondylitis and I frequently get what's called nutcracker oesophagus, which is where the oesophageal muscle spasms and cramps and it feels like a heart attack (but it's not, I've checked so don't panic). Sometimes these spasms go on for hours where it feels like I can't breathe, can't move and can't talk. It's so painful, I can't even tell you how bad. Like you want to die to escape it. Like someone is standing on your sternum in a sharp stiletto heel. I live in constant fear that an attack will happen and so I don't like to leave my house in case it does. I can't even imagine being out and about when that happens. The first time it happened, I called an ambulance because I thought I was dying and seriously, some part of me wondered whether I shouldn't just let it happen and then the whole nightmare of my life could be over. But no, I didn't die. I just had to put up with that pain for about 3 and a half hours before it subsided.
Right now, my feet hurt, my hips ache something awful, my back hurts, my neck hurts and I feel that horrible feeling right before a nutcracker attack. And it's freakin' cold!
Right now, my feet hurt, my hips ache something awful, my back hurts, my neck hurts and I feel that horrible feeling right before a nutcracker attack. And it's freakin' cold!