Old 07-13-2016, 04:16 PM #1
VegAthLes's Avatar
VegAthLes VegAthLes is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2016
Posts: 29
VegAthLes is on a distinguished road
VegAthLes VegAthLes is offline
New Member (Say Hi)
Registered Member
VegAthLes's Avatar
Join Date: 2016
City: Orlando
State: Florida
Country: US
Diagnosed: 06/2016
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 29
VegAthLes is on a distinguished road
Default Progressive pain under treatment?

For those of you undergoing treatment (pain management) for your fibro, I have a question. Have you found the pain to be progressive in your body and life?

My pain has been dramatically progressive over the last two years, but I was not receiving treatment until this summer. Now that I have pain management treatment, I'm curious as to what I should expect. Will the pain continue to progress and my meds/treatment will continue to be adjusted, or is it more likely to kind of stay where it is now that I'm getting it under control?

I know there are a lot of factors, but I'm kind of looking for "This is what I experience" kind of answers.

Thanks!
VegAthLes is offline  
Old 07-14-2016, 10:00 AM #2
Northernelf Northernelf is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2015
Posts: 50
Northernelf is on a distinguished road
Northernelf Northernelf is offline
New Member (Say Hi)
Registered Member
Join Date: 2015
City: Elf
State: British Columbia
Country: CA
Diagnosed: 03/2015
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 50
Northernelf is on a distinguished road
Default Re: Progressive pain under treatment?

I do.

I have been trying to figure out what is wrong with me for almost four years. I got pneumonia a few times and was diagnosed with CVID and inject plasma to pump up my immune system. CVID can have some joint pain but my pain progressed, even with treatment. A year & a half ago a rheumy diagnosed me with Fibro (3rd rheumy I saw). I have mixed feelings about the diagnosis as my blood work is full of other people's plasma so I am not sure how accurate the RA & Lupus testing is - time will tell I guess.

Since then - my pain is way worse. I have whittled my work schedule down from a very physical one to more sitting or less movement (though I exercise away from work to keep moving). Winters are absolutely terrible for me so I am really enjoying summer right now but pain is always a constant. We have snowy cold winters where I live and I can no longer tolerate cold. Summer I can do more but have to be careful not to overdo it. I strain or hurt way easier and it lasts longer than before. My evenings are down time because I am often pretty tired. Lying in bed at night sometimes for an hour for the humming or pain in my body to simmer down so I can sleep. Mornings...ugh...takes time to want to get moving.

The only drugs I take are amitryptiline so I can sleep and to reduce nerve pain & Tylenol for headaches (which I get often) as my stomach is sensitive - ibuprofen would work better but I only take it for the killer headaches. I have tried a couple of other fibro drugs but they did nothing for the pain and the side effects sucked. Once I ran out of amitryptiline in between prescriptions and my pain was HUGE - surprised me because I was thinking it only really helped me sleep, or at least get back to sleep when I woke up. So I guess....it could be worse ???

Activity levels, diet, rest & sleep - all factor in here, as well as weather/season. If I don't rest/sleep enough I'm hooped. If I eat crappy, same thing. Hydration as well. Everyone has to experiment I guess with what irritates thing.
Northernelf is offline  
Old 07-14-2016, 10:56 AM #3
VegAthLes's Avatar
VegAthLes VegAthLes is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2016
Posts: 29
VegAthLes is on a distinguished road
VegAthLes VegAthLes is offline
New Member (Say Hi)
Registered Member
VegAthLes's Avatar
Join Date: 2016
City: Orlando
State: Florida
Country: US
Diagnosed: 06/2016
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 29
VegAthLes is on a distinguished road
Default Re: Progressive pain under treatment?

I'm sorry your pain has gotten so much worse. I have the opposite seasonal problem you do. I live in central Florida, so we have mild winters (which are great for my pain levels), but I can barely go outside in the summer because I can't tolerate the heat!

I hope you can find a treatment plan that helps you!
VegAthLes is offline  
Old 07-18-2016, 04:24 AM #4
Nireno's Avatar
Nireno Nireno is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2016
Posts: 30
Nireno is on a distinguished road
Nireno Nireno is offline
New Member (Say Hi)
Registered Member
Nireno's Avatar
Join Date: 2016
City: The moon
State: Province of the moon
Country: CA
Diagnosed: 00/2011
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 30
Nireno is on a distinguished road
Default Re: Progressive pain under treatment?

I'm under pain management with Elavil as well and it does help about 25-30%. Also very mild tylenol/codeine which helps enormously and quickly and probably saved my life because the pain was tearing my life and body apart from never having relief from the extreme, impossible to live with pain. The pain left me so exhausted and scared everyday that I could barely move let alone walk or do anything normal. It doesn't fix everything and I do still have extreme pain days but I can walk and sit up, things which I could barely do before without having a physical/mental breakdown. I'm still at the point where I need a wheelchair somedays and other days (although not recently) I can go out and do some shopping. I'm only 37, this isn't normal. I was healthy and fit and ate well but started getting weaker and weaker (probably not enough protein in my diet or something else) then the pain started and that was the beginning of the end. My meds were only upped once and won't be again. But the meds significantly increased my quality of life. I use to never take pills and was all about natural ways to remedy but when things got very serious they kept me from multiple visits to the hospital and the doctor and days of agony. I still have days of agony but it's not as extreme was it was. And for me the pain is getting worse. So it can get progressively worse. Although I hope it's not the same in your case.
__________________
Diagnosed with fibro, peripheral neuropathy, high WBC and inflammation in blood tests.
Nireno is offline  
Closed Thread

Tags
looking for, meds, men, pain, pain management, treatment


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Similar Threads
Thread Thread Starter Forum Replies Last Post
fibro, is it progressive? caterina General Discussions About Fibromyalgia 9 08-17-2015 01:18 PM
Is fibro progressive Trfielder General Discussions About Fibromyalgia 9 10-14-2013 03:25 PM
Treatment? vida_llevares General Discussions About Fibromyalgia 3 01-31-2013 11:42 PM
Wondering about progressive symptoms NC guy General Discussions About Fibromyalgia 6 05-18-2009 06:04 AM

 
All times are GMT -5. The time now is 12:53 PM.
Copyright © 2017