Bee1003
New member
- Joined
- Aug 28, 2015
- Messages
- 1
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- Other
- Diagnosis
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- Country
- US
- State
- Pa
Hi everyone. I haven't been diagnosed yet but my rheumatologist has mentioned fibromyalgia. He first wants to do a few more tests before we go there he said. So I wanted to share my symptoms and what has been going on for years and would really appreciate some opinions/feedback on whether you had similar symptoms before diagnosed and whether you believe I could actually have fibromyalgia.
First, I have been to almost every specialist imaginable and have had a ton of blood tests, x-Rays, CT scans and MRIs done. I even had to have a bone marrow biopsy recently that came back negative for leukemia/lymphoma. We are at the point now where the doctor is looking into autoimmune diseases but so far doesn't think I have anything there. All lab work comes back pretty normal for most part.
Symptoms- achiness throughout my body but especially legs, back, neck. Frequent headaches and a few migraines. Dizziness/blurred vision occasionally. Extreme fatigue. Stomach sensitivity to some foods. Mouth sores off and on. Sore throat off and on. My sleep isn't perfect but I wouldn't say I don't sleep "well". I seem to get these flare ups where I get fevers and it makes the aches/pains worse. The fever is what had doctors thinking the worst and doing a ton of tests. Some doctors also said that fibromyalgia wouldn't cause fevers?
Like I said, everything seems to be normal as far as tests and the doctors really don't know now. So I'm curious if anyone has had similar symptoms before they were diagnosed or ever with fibromyalgia? I'm just so sick of feeling so bad all the time and want some relief. I have days that are so bad sometimes from the aches and fatigue that I can barely do anything.
Any help and advice would be greatly appreciated! Thanks!
First, I have been to almost every specialist imaginable and have had a ton of blood tests, x-Rays, CT scans and MRIs done. I even had to have a bone marrow biopsy recently that came back negative for leukemia/lymphoma. We are at the point now where the doctor is looking into autoimmune diseases but so far doesn't think I have anything there. All lab work comes back pretty normal for most part.
Symptoms- achiness throughout my body but especially legs, back, neck. Frequent headaches and a few migraines. Dizziness/blurred vision occasionally. Extreme fatigue. Stomach sensitivity to some foods. Mouth sores off and on. Sore throat off and on. My sleep isn't perfect but I wouldn't say I don't sleep "well". I seem to get these flare ups where I get fevers and it makes the aches/pains worse. The fever is what had doctors thinking the worst and doing a ton of tests. Some doctors also said that fibromyalgia wouldn't cause fevers?
Like I said, everything seems to be normal as far as tests and the doctors really don't know now. So I'm curious if anyone has had similar symptoms before they were diagnosed or ever with fibromyalgia? I'm just so sick of feeling so bad all the time and want some relief. I have days that are so bad sometimes from the aches and fatigue that I can barely do anything.
Any help and advice would be greatly appreciated! Thanks!