tleeves
New member
- Joined
- Nov 20, 2013
- Messages
- 3
- Reason
- DX FIBRO
- Diagnosis
- 11/2013
- Country
- US
- State
- FL
Hi Fellow Fibro friends! I was just diagnosed with fibromyalgia, which is also called "central sensitization disorder" by Mayo Clinic in Jacksonville. They have recommended a two-day treatment program and I will be attending on Monday and Tuesday. I met with the psychologist that runs the program yesterday and felt she was really concerned and interested in helping us to learn more about this monster so we can hopefully have a more positive life.
This disease has robbed me of my 30 year career in which I can no longer function cognitively at an executive level. This feels like failure to me and that I've let my family down as I have always been the breadwinner. Now I wait at the mailbox for my disability benefits to arrive, which is pretty much when they feel like sending. I'm terrified that I will lose my medical insurance! And I know I need to move out of this house and lower my monthly living expenses. Anyhow, I doubt the session will help me figure all that out!
About me real quick...I'm a 46 year old mother of two boys, 20 & 25 and married for 22 years. It all started 4 years ago with burning pain on tops of my feet and in my joints in my hands. Then enlarged lymph nodes in my neck along with fatigue, joint poin, cognitive impairment, rash on chest, hair falling out, etc. Initial diagnosis was lymphoma until the biopsies came back negative. However, I still continue to have the enlarged nodes. They removed one altogether and it showed "reactive hyperplasia". I also have excess tissue in my throat and lingual tonsils. I would be curious to see if any of you guys have a similar experience with the enlarged nodes in neck?!
So now I'm at Mayo trying to get answers...so far, fibromyalgia and I hate the stigma that goes along with this disease. My blood work looks great (cause I know someone will ask), some arthritis in hands, feet and top of femur. History of saliva stones, uveitis and dry eye/mouth.
Thanks for listening! :?
This disease has robbed me of my 30 year career in which I can no longer function cognitively at an executive level. This feels like failure to me and that I've let my family down as I have always been the breadwinner. Now I wait at the mailbox for my disability benefits to arrive, which is pretty much when they feel like sending. I'm terrified that I will lose my medical insurance! And I know I need to move out of this house and lower my monthly living expenses. Anyhow, I doubt the session will help me figure all that out!
About me real quick...I'm a 46 year old mother of two boys, 20 & 25 and married for 22 years. It all started 4 years ago with burning pain on tops of my feet and in my joints in my hands. Then enlarged lymph nodes in my neck along with fatigue, joint poin, cognitive impairment, rash on chest, hair falling out, etc. Initial diagnosis was lymphoma until the biopsies came back negative. However, I still continue to have the enlarged nodes. They removed one altogether and it showed "reactive hyperplasia". I also have excess tissue in my throat and lingual tonsils. I would be curious to see if any of you guys have a similar experience with the enlarged nodes in neck?!
So now I'm at Mayo trying to get answers...so far, fibromyalgia and I hate the stigma that goes along with this disease. My blood work looks great (cause I know someone will ask), some arthritis in hands, feet and top of femur. History of saliva stones, uveitis and dry eye/mouth.
Thanks for listening! :?