Whyfor
Active member
- Joined
- Dec 20, 2013
- Messages
- 39
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
Primarily thanks to this forum, I've come to the realization that I have spent several years just passively accepting my illness without ever knowing for sure what was causing my suffering. This happened because, I think, I've undergone about ten years of being told "I don't know what's wrong with you," and, "I think you're just depressed." Frustration and anger had driven me away, and I've been trying to deal with it outside of doctors and tests, with the loving help of my incredible spouse, who supports me and believes in my pain (Oh, yes, I know how fortunate it am). But I'm just running away from what might be the truth.
The only time Fibromyalgia was ever brought up to me as an option was quite a while ago, when the condition was still being widely debated as to whether or not it was even a genuine diagnosis. When the Rheumatologist in question poked me in all the "Tender Spots," and found I was only sensitive in and around my hips, she shrugged her shoulders and sent me on my way. Since then, I believe I created for myself the idea that Fibromyalgia is only a throw-away "disease" doctors give people when they don't know what's actually wrong. And I feel terrible for it.
I have all the core symptoms, plus a few atypical ones, including sun sensitivity and easy bruising. They began after a terrible bout of Mono as a teenager, and I just never got completely better. I've never been able to hold a steady job, and attaining any form a disability has been impossible because no doctor has ever given me a real diagnosis.
Before I go rambling any further, I think I just wanted to say "Thank you," and let you wonderful people know that I'm restarting this miserable journey through the medical system. My first plan of action is to contact my GP to see if she has any suggestions on a good Rheumy to visit. (Hopefully one I haven't seen in the past, since I've already gone to a handful of them in my area.)
If anyone has any good advice, I would be so grateful to hear it! But again, thank you so much! The forums have been awesome for me! And I mean that sincerely. :smile:
The only time Fibromyalgia was ever brought up to me as an option was quite a while ago, when the condition was still being widely debated as to whether or not it was even a genuine diagnosis. When the Rheumatologist in question poked me in all the "Tender Spots," and found I was only sensitive in and around my hips, she shrugged her shoulders and sent me on my way. Since then, I believe I created for myself the idea that Fibromyalgia is only a throw-away "disease" doctors give people when they don't know what's actually wrong. And I feel terrible for it.
I have all the core symptoms, plus a few atypical ones, including sun sensitivity and easy bruising. They began after a terrible bout of Mono as a teenager, and I just never got completely better. I've never been able to hold a steady job, and attaining any form a disability has been impossible because no doctor has ever given me a real diagnosis.
Before I go rambling any further, I think I just wanted to say "Thank you," and let you wonderful people know that I'm restarting this miserable journey through the medical system. My first plan of action is to contact my GP to see if she has any suggestions on a good Rheumy to visit. (Hopefully one I haven't seen in the past, since I've already gone to a handful of them in my area.)
If anyone has any good advice, I would be so grateful to hear it! But again, thank you so much! The forums have been awesome for me! And I mean that sincerely. :smile: