Mika96
New member
- Joined
- Dec 12, 2015
- Messages
- 1
- Reason
- DX FIBRO
- Diagnosis
- 12/2015
- Country
- AU
- State
- Queensland
Hi everyone!
I'm new here, and only very recently diagnosed with FM (and a few other things), two days ago. I've been in and out of hospitals and medical centres for the last 18 months, and despite finally having a diagnosis, I'm still having multiple scans and tests.
I've been having issues with my health for a long time, but particularly the last year and a half. Originally doctors though I might have Crohn's, but after multiple scans and tests coming back negative, they weren't sure. More scans, more blood tests, CT's, Ultrasounds, MRI's, etc and still nothing, they started to question if there was anything wrong with me at all. I knew what I was feeling, I knew I was in pain but due to there being no solid evidence, I started to question myself. Maybe I'm just over-exaggerating, maybe it's all in my head, maybe I'm imagining it, right? My pain kept getting worse, spreading from my back down to my thighs and knees, from my shoulders to my neck, arms and hands. I was getting migraines every few days, my sleeping pattern is still all over the place, lights became overwhelming and painful to look at, I began getting irrationally cold in 27 degrees (celcius). I've struggled with depression and anxiety most of my life, but they both got worse throughout all of this. My memory became quite bad, I'd repeat myself a few times in a row because I couldn't remember if I'd already spoken, I started falling behind in my classes (I'm a graphic design student) and overall my concentration was pretty bad.
All of these things are continuing to get worse, and these last few days have been some of the worst I've ever experienced. I guess my point in posting here is to try and connect with people who understand fibro and CPS, people who have had similar experiences and I guess to find some good ways to manage the pain and get some proper sleep!
At the moment I have a wheat bag that heats in the microwave on my knee, which I originally bought to help with period cramps (another thing I have questions about, does anyone else get ridiculously painful periods?), but so far it's been pretty good in relieving some pain in my back and knees.
What are some of your experiences leading up to, during and after diagnosis? What are some things that help you guys, whether it be with managing pain, sleeping, getting around (I require help walking sometimes on really bad days), or dealing with insensitive or ignorant people regarding your illness? I only ask because I'm getting quite frustrated with the amount of people who stare or give me dirty looks when I use the disabled seats on the bus or walk too slow for their liking etc.
I'm new here, and only very recently diagnosed with FM (and a few other things), two days ago. I've been in and out of hospitals and medical centres for the last 18 months, and despite finally having a diagnosis, I'm still having multiple scans and tests.
I've been having issues with my health for a long time, but particularly the last year and a half. Originally doctors though I might have Crohn's, but after multiple scans and tests coming back negative, they weren't sure. More scans, more blood tests, CT's, Ultrasounds, MRI's, etc and still nothing, they started to question if there was anything wrong with me at all. I knew what I was feeling, I knew I was in pain but due to there being no solid evidence, I started to question myself. Maybe I'm just over-exaggerating, maybe it's all in my head, maybe I'm imagining it, right? My pain kept getting worse, spreading from my back down to my thighs and knees, from my shoulders to my neck, arms and hands. I was getting migraines every few days, my sleeping pattern is still all over the place, lights became overwhelming and painful to look at, I began getting irrationally cold in 27 degrees (celcius). I've struggled with depression and anxiety most of my life, but they both got worse throughout all of this. My memory became quite bad, I'd repeat myself a few times in a row because I couldn't remember if I'd already spoken, I started falling behind in my classes (I'm a graphic design student) and overall my concentration was pretty bad.
All of these things are continuing to get worse, and these last few days have been some of the worst I've ever experienced. I guess my point in posting here is to try and connect with people who understand fibro and CPS, people who have had similar experiences and I guess to find some good ways to manage the pain and get some proper sleep!
At the moment I have a wheat bag that heats in the microwave on my knee, which I originally bought to help with period cramps (another thing I have questions about, does anyone else get ridiculously painful periods?), but so far it's been pretty good in relieving some pain in my back and knees.
What are some of your experiences leading up to, during and after diagnosis? What are some things that help you guys, whether it be with managing pain, sleeping, getting around (I require help walking sometimes on really bad days), or dealing with insensitive or ignorant people regarding your illness? I only ask because I'm getting quite frustrated with the amount of people who stare or give me dirty looks when I use the disabled seats on the bus or walk too slow for their liking etc.