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Teddiurssa

New member
Joined
Dec 9, 2015
Messages
2
Reason
DX FIBRO
Diagnosis
11/2015
Country
CA
State
British Columbia
Hi,

I just been diagnosed with FM for about a month and been only dealing with in since April of this year. So not long but it does feel like its been years already. I not sure what started the pain but we think it was stress because I was upgrading some of my skills for work and during that process my hands started to hurt then the rest of me followed after. I've always have had sleeping issue since I was a kid and been on/off sleeping pills my whole life. I've always felt tired so at least that not new.

Luckily I have a doctor very familiar with dealing with patients going through these symptoms. Plus she tested me for everything else she could think of, all those tests I am just waiting to go see a rheumatologist in February or hopefully sooner if I'm lucky. I am a little scared to see him since I have such a close relationship with my GP but I trust her judgment and their is not much else she can do for me.

I've been on Cymbalta and Gabapentin for the pain, the combination seem to work okay. I have good days and bad. Some days the pain is so bad I can't leave me bed to go to work or even walking to the bathroom is the most challenging thing of the day. Most of my pain seems to be centralized in my thighs or hip area. Also in my arms or hand feel way to puffy to do anything even typing or drawing like I used to. I used to do martial arts and exercise few time a week and now I have a hard time walking upstairs to get to my bedroom on some days. I'm happy I still work full time at my job which is in a pharmacy plus I don't drive and I walk everywhere or take the bus. I'm still pretty mobile about 80% of the time and I just try to ignore the pain as best I can.

My friends don't understand what I'm really going through at all and its hard for them to seem me sometimes. I am lucky that I have a very supportive boyfriend who has help me every step of the way but sometimes I can tell he doesn't really know either. He just sees the tears and frustration which I'm sure we all have experience. Fibro-Fog is got to be the worst when it hits, I lose words so easy and I used to have the best memory now I forget things all the time which can really annoy people.

Wow I didn't mean to write so much. I just happened upon this cite when I was doing some more research and was happy to see a support forum. My GP has been wanting me to go to support groups but I haven't be able to afford to take the time off work. So I'll try this out instead.

So nice to meet you, sorry for rambling :lol:
 
Welcome. U no my pain lately is my legs and shoulder .i feel 100.like u I walk everywhere I'm not working but do have a 3 years old.
I'm very close to my dr to. I'm waiting to go through pip.which means another dr .hang in there kid your not alone . We all understand how u feel
 
Nice to meet you Teddi! I live in Ontario. I just joined this month. Going to see the Rheumatologist is what you need as she/he will be able to diagnose you and give you some information (hopefully) and some help. Or at least, say, yes....you have FMS. Sounds like you are doing what I have been doing for the past two years and doing lots of research. It is a lot of work and time and trials and errors. Most people don't understand and probably won't unless they do a little research themselves. Let me know how it goes! Sheri
 
Welcome. Sounds like your off to good start with a doctor who understands. Friends and family are a little different. You are probably their first encounter with this "invisible" disease. It's just not been around lond enough for people to be educated! I had no idea what it was when my doctor told me that's what I had. Trust me, if you said you had cancer they couldn't do enough! Until you have exsperiances the pain and other symptoms you just can't understand completely. That doesn't mean they can't sympathies with you. They should take the time to research it just a little. Unfortunately the day after I was diagnosed my husband new (arrogant, know-it-all co-worker told him he was diagnosed with it and he took some medicine and supplements and now he's fine he only hurt for about a month! Lol, my husband thought I would be cured in a month! I don't think he gets the pain or lack of energy and I KNOW he doesn't get the fibro fog (although he has come to accept it) he loves and supports me anyway. You will weed out your true friends and find new ones that are more in line with you. This is true through out our lives with or with out a disease. We change and our friends change so it's normal that we find/change friends in time.
Be patient with your boyfriend this is new to him to. And it is hard to watch someone you love hurt or be frustrated. Men are "fixers". And when they can't fix something it frustrates, confuses or hurts their egos.
Welcome again.
 
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