Bugsy
New member
- Joined
- Dec 20, 2014
- Messages
- 7
- Reason
- DX FIBRO
- Diagnosis
- 10/2014
- Country
- UK
- State
- UK
Hello,
I've joined this site as I'm having a difficult time at the moment and don't know what to do next. I was diagnosed in October after struggling for nearly 5 years and a doctor finally listening to me! Even though it was such a fight to get diagnosed and start getting treatment, I'm now struggling to come to terms with it all, my fibro has definitely got worse in the past year, and now it officially has a name, I'm struggling to accept that I'm going to have this forever. I'm not in a good place at the moment, I'm finding it hard to get the right medication working for me and I've had to reduce my hours at work so I'm just working 6 hours a day, but I'm still in pain everyday and most days I feel so overwhelmed by it all. I'm not managing to get the housework done and I feel like I'm failing in every aspect of my life. My family don't really understand and I'm quite good at hiding my pain infront of others so tend to put on an act until I get home and collapse. I've stopped going out and socialising much at the moment because I don't have energy for it, but I don't know how to stop putting on this front of coping, at work, if I'm having a bad pain day, they all just think I'm being miserable instead of realising that I'm faking it most of the time! I try to talk about it to my husband and a few close friends, but I find it hard to explain my feelings. My husband can't see why I'm getting so upset about it when I've struggled for years and years when now I've started getting treatment. I know I need to be positive about it, but I don't see what I've got to be positive about right now. How do you all cope with this illness on a day to day basis? How did you all come to terms with your diagnosis? How do you make others realise that you're not always able to meet their expectations? Any help will be greatly received. Thanks
I've joined this site as I'm having a difficult time at the moment and don't know what to do next. I was diagnosed in October after struggling for nearly 5 years and a doctor finally listening to me! Even though it was such a fight to get diagnosed and start getting treatment, I'm now struggling to come to terms with it all, my fibro has definitely got worse in the past year, and now it officially has a name, I'm struggling to accept that I'm going to have this forever. I'm not in a good place at the moment, I'm finding it hard to get the right medication working for me and I've had to reduce my hours at work so I'm just working 6 hours a day, but I'm still in pain everyday and most days I feel so overwhelmed by it all. I'm not managing to get the housework done and I feel like I'm failing in every aspect of my life. My family don't really understand and I'm quite good at hiding my pain infront of others so tend to put on an act until I get home and collapse. I've stopped going out and socialising much at the moment because I don't have energy for it, but I don't know how to stop putting on this front of coping, at work, if I'm having a bad pain day, they all just think I'm being miserable instead of realising that I'm faking it most of the time! I try to talk about it to my husband and a few close friends, but I find it hard to explain my feelings. My husband can't see why I'm getting so upset about it when I've struggled for years and years when now I've started getting treatment. I know I need to be positive about it, but I don't see what I've got to be positive about right now. How do you all cope with this illness on a day to day basis? How did you all come to terms with your diagnosis? How do you make others realise that you're not always able to meet their expectations? Any help will be greatly received. Thanks