Old 09-26-2013, 04:38 PM #1
Trellum's Avatar
Trellum Trellum is offline
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,788
Trellum is on a distinguished road
Trellum Trellum is offline
Very Helpful Member
Registered Member
Trellum's Avatar
Join Date: 2013
City: NL
State: NL
Country: NL
Diagnosed: 04/2011
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,788
Trellum is on a distinguished road
Default Are there any men diagnosed with fibro on this forum?

I was reading the other day that that fibro isn't very common among men, but it can happen from time to time. This made me wonder... are there any men over here who have been diagnosed with fibro? Do you know a man who has been diagnosed with fibro?

I'm just curious, because it seems most people over here (who have been diagnosed with fibro) are females. So it'd be interesting to know how many men over here are also suffering from this.
Trellum is offline  
Old 09-27-2013, 04:10 AM #2
Krishna Krishna is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2013
Posts: 16
Krishna is on a distinguished road
Krishna Krishna is offline
New Member (Say Hi)
Registered Member
Join Date: 2013
City: Pietermaritzburg
State: KZN
Country: ZAF
Diagnosed: 02/2013
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 16
Krishna is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

Hi There,

I am a male diagnosed with Fibromyalgia about 6months now.
Krishna is offline  
Old 09-27-2013, 03:37 PM #3
Trellum's Avatar
Trellum Trellum is offline
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,788
Trellum is on a distinguished road
Trellum Trellum is offline
Very Helpful Member
Registered Member
Trellum's Avatar
Join Date: 2013
City: NL
State: NL
Country: NL
Diagnosed: 04/2011
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,788
Trellum is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

Hi Krishna! I guess you're the only man who has been diagnosed with this disease. I had never met a man suffering from this before, what was the first clue that something wrong was going on? By the way, sorry to hear you were diagnosed with this, but I'm glad you found this forum; this forum has helped me a lot.
Trellum is offline  
Old 10-01-2013, 06:48 AM #4
Krishna Krishna is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2013
Posts: 16
Krishna is on a distinguished road
Krishna Krishna is offline
New Member (Say Hi)
Registered Member
Join Date: 2013
City: Pietermaritzburg
State: KZN
Country: ZAF
Diagnosed: 02/2013
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 16
Krishna is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

Hi There,

I was suffering from extreme pain and spasm in upper back. I was admitted to hospital where I had various test including MRI scan done on two occasions. All tests were inconclusive. I was diagnosed by a GP who has shown great interest in researching this disease. I was sceptical at first but he told me to research it before he told me more. When I did, I found that all the other symptoms I have is related to fybro.
Krishna is offline  
Old 10-01-2013, 06:51 AM #5
Krishna Krishna is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2013
Posts: 16
Krishna is on a distinguished road
Krishna Krishna is offline
New Member (Say Hi)
Registered Member
Join Date: 2013
City: Pietermaritzburg
State: KZN
Country: ZAF
Diagnosed: 02/2013
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 16
Krishna is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

I cannot believe the effect this disease has. It is slowly ruining my family life and my professional career.

Sometimes I have suicidal thoughts because I just don't know what to do!

I tried all conventional fybro medication (Lyrica, Cymbalta and other pain killers) but none of them work.
Krishna is offline  
Old 10-02-2013, 09:36 AM #6
rollinloud rollinloud is offline
Member
Registered Member
 
Join Date: 2013
Posts: 178
rollinloud is on a distinguished road
rollinloud rollinloud is offline
Member
Registered Member
Join Date: 2013
City: New York
State: NY
Country: US
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 178
rollinloud is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

Yes. I am male and I have had fibro for about 4 years now. I don't think that it is as rare as you think. I actually know several other men in my area who are also afflicted with fibromyalgia.
rollinloud is offline  
Old 10-02-2013, 02:22 PM #7
Trellum's Avatar
Trellum Trellum is offline
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,788
Trellum is on a distinguished road
Trellum Trellum is offline
Very Helpful Member
Registered Member
Trellum's Avatar
Join Date: 2013
City: NL
State: NL
Country: NL
Diagnosed: 04/2011
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,788
Trellum is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

Hi rolling! Well, so far I had heard is way more common in women, and it seems most people over here are women. I found your post really interesting... because you mention you know other men in your area who suffer from this as well. I wonder if it could have something to do wirth the enviroment? Because where I live I have heard of no one (apart from me) suffering from this.
Trellum is offline  
Old 10-02-2013, 02:26 PM #8
Trellum's Avatar
Trellum Trellum is offline
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,788
Trellum is on a distinguished road
Trellum Trellum is offline
Very Helpful Member
Registered Member
Trellum's Avatar
Join Date: 2013
City: NL
State: NL
Country: NL
Diagnosed: 04/2011
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,788
Trellum is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

Quote:
Originally Posted by Krishna View Post
Hi There,

I was suffering from extreme pain and spasm in upper back. I was admitted to hospital where I had various test including MRI scan done on two occasions. All tests were inconclusive. I was diagnosed by a GP who has shown great interest in researching this disease. I was sceptical at first but he told me to research it before he told me more. When I did, I found that all the other symptoms I have is related to fybro.
Hi Krishna! Have you thought of using medical marijuana? is it even legal over there? By the way, I'm sorry to hear fibro is ruining your life. It's always hard when you're just diagnosed. It feels like your whole world is crumbling all around you, but there still is hope! There many therapies nowadays that can be used to treat fibro. Right now I'm unemdicated, but I use medical marijuana for the pain and it works great! I take other things to calm my nerves as well.

I know sometimes feeling suicidal is so easy when you're suffering from this, beleive me, I've been there a lot times! But then I remember I've a family that really need me and would feel horrible if I ever do something like that...
Trellum is offline  
Old 10-06-2013, 07:52 PM #9
bszarek001 bszarek001 is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2013
Posts: 10
bszarek001 is on a distinguished road
bszarek001 bszarek001 is offline
New Member (Say Hi)
Registered Member
Join Date: 2013
City: Cincinnati
State: OH
Country: USA
Diagnosed: 07/2012
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 10
bszarek001 is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

I am male and have it. I have leg, shoulder and neck pain, tinnitus, tmj, raynauds (I think), muscle spasms, and General Anxiety Disorder. It's been a rough ride- have had it for at least a year that I know of- probably longer. I keep plugging along hoping that one day I'll find a pain med and anxiety med that will work in harmony to get me into remission. Keep ok thinking positively.

Brian
bszarek001 is offline  
Old 10-06-2013, 10:18 PM #10
Trellum's Avatar
Trellum Trellum is offline
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,788
Trellum is on a distinguished road
Trellum Trellum is offline
Very Helpful Member
Registered Member
Trellum's Avatar
Join Date: 2013
City: NL
State: NL
Country: NL
Diagnosed: 04/2011
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,788
Trellum is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

Sorry to hear that, I'm also suffering from anxiety (plus chronic depression) right now I'm unmedicated, because I've tried both pain and anxiety meds that instead of improving things, have worsened my case with their side effects I'm afraid you will have to try a better solution for your anxiety issues Most anxiety and depression meds come with a lot side effects, and they don't always work they way they're intended to. Have you tried ASMR videos? They relax me a lot.
Trellum is offline  
Old 10-07-2013, 12:34 AM #11
rollinloud rollinloud is offline
Member
Registered Member
 
Join Date: 2013
Posts: 178
rollinloud is on a distinguished road
rollinloud rollinloud is offline
Member
Registered Member
Join Date: 2013
City: New York
State: NY
Country: US
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 178
rollinloud is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

Quote:
Originally Posted by Trellum View Post
Hi rolling! Well, so far I had heard is way more common in women, and it seems most people over here are women. I found your post really interesting... because you mention you know other men in your area who suffer from this as well. I wonder if it could have something to do wirth the enviroment? Because where I live I have heard of no one (apart from me) suffering from this.
It doesn't have anything to do with the environment. It is unique to each individual regardless of where they live. I thought we all understood this about fibro.
rollinloud is offline  
Old 10-07-2013, 07:15 PM #12
Trellum's Avatar
Trellum Trellum is offline
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,788
Trellum is on a distinguished road
Trellum Trellum is offline
Very Helpful Member
Registered Member
Trellum's Avatar
Join Date: 2013
City: NL
State: NL
Country: NL
Diagnosed: 04/2011
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,788
Trellum is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

Well, rollinloud, there are A LOT things that not even the doctors understand about fibro. I'm not a doctor, but I'm friends with one and he says most of them are not sure what's the main cause is. NO ONE knows for sure.

Last edited by Trellum : 10-07-2013 at 07:24 PM
Trellum is offline  
Old 10-20-2013, 09:23 PM #13
mew20176 mew20176 is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2013
Posts: 4
mew20176 is on a distinguished road
mew20176 mew20176 is offline
New Member (Say Hi)
Registered Member
Join Date: 2013
City: Leesburg
State: Virginia
Country: USA
Diagnosed: 05/2011
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 4
mew20176 is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

I am a male. I was diagnosed with Fibro, RA and UCTDs around May 2011. Probably had Fibro much longer. My sister also has Fibro.
mew20176 is offline  
Old 11-08-2013, 11:57 AM #14
nascarmike nascarmike is offline
Member
Registered Member
 
Join Date: 2013
Posts: 227
nascarmike is on a distinguished road
nascarmike nascarmike is offline
Member
Registered Member
Join Date: 2013
City: warwick
State: rhode island
Country: US
Diagnosed: 06/2013
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 227
nascarmike is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

I'm a dude and have fm. Don't know any others personally.
nascarmike is offline  
Old 11-12-2013, 08:20 PM #15
nvdiver nvdiver is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2013
Posts: 10
nvdiver is on a distinguished road
nvdiver nvdiver is offline
New Member (Say Hi)
Registered Member
Join Date: 2013
City: Carson City
State: NV
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with FIBRO/CFS/PAIN
Posts: 10
nvdiver is on a distinguished road
Default Re: Are there any men diagnosed with fibro on this forum?

I am a male and have just asked the same question on another forum. My understanding is that fibro is thought to be highly under diagnosed in men. If I remember right they say that men are about 2% of those diagnosed with it. Like some of the other that posted, I have anxiety, sleeplessness and pain that has progressively and slowly gotten worse over the last few years before finally getting the diagnosis.

I take medication for the anxiety and to help me sleep. I haven't been given anything that really has hit the pain/aches... Haven't tried lyrica or cymbalta or any of the other medications mentioned here. I think it will be a trial and error phase for me for a while since I was just given the official diagnosis last month. My GP has taken a lot of time and continues to research the treatment regimes being used and I think it will begin to take some of the frustration I have had in the past away. It was kind of a relief to finally have a name attached to my condition, but at the same time disappointing that there is little known about it and the pathways to what will control it are so varied. Its not like a broken bone, where they set it, cast it and it goes away over time.
nvdiver is offline  
Closed Thread

Tags
fibromyalgia, men


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Similar Threads
Thread Thread Starter Forum Replies Last Post
family members diagnosed with fibro Little Bev General Discussions About Fibromyalgia 7 09-25-2013 07:00 PM
Is fibro over-diagnosed BrendaMarie General Discussions About Fibromyalgia 21 06-09-2013 07:38 PM
Going on one year as being diagnosed with fibro angiemouse Welcome New Members - Say Hello 0 05-15-2013 09:10 PM
New to this forum. strength General Discussions About Fibromyalgia 3 04-22-2013 10:36 PM
New to the forum, new(ish) to Fibro Reanna General Discussions About Fibromyalgia 3 04-21-2013 07:34 PM

 
All times are GMT -5. The time now is 08:40 PM.
Copyright © 2017