athena_
Member
- Joined
- May 17, 2014
- Messages
- 18
- Reason
- DX FIBRO
- Diagnosis
- 04/2014
- Country
- US
- State
- az
Hello, I am relatively newly diagnosed with fibro (3 months ago). For me it seems like I've been struggling with the pain and degeneration for more than 6 years. My father's name for it is "the creeping crud." I wonder if others have the same trouble I do with the pain in your hands and feet? I sometimes have burning pain in my hands but mostly it's achy. Also I have serious strength and mobility problems with my hands. I feel like I'm losing my ability to use my hands. My skin on my hands gets really sensitive to touch, I can't set my hand down on my pant leg because the seam on the leg 'hurts' my hand. (I know I'm so weird). Tonight I tired to change the sheets on the bed and just didn't have the strength or ability to complete the task. I've been tested for everything under the sun and every single test (with the exception of low vitamin D) came back negative. My feet hurt too but only when I stand or walk for more than 2 minutes, once I sit back down most of the foot pain goes away. I have headaches and migraines 6 days out of 7. I have really bad mouth sores, not cold sores but they are called mouth ulcers and they hurt terribly. Today my neck hurts horribly like I pulled a muscle but unless you can pull a muscle brushing your teeth it's 'just' fibro pain. This is a laundry list, sorry. The last 2 months I've had terrible eye pain and light sensitivity. I'm not sure what's causing that but it's horrible. It feels like my entire eyeball and the muscles that move the eye hurt. I can't even get relief from sitting in a dark room. I use a sleeping mask to block out extraneous light from my bedside alarm clock. I have an appointment tomorrow to get my eyes checked - like every other test I've had done they will probably be FINE!
I'm extremely frustrated with everything. I don't have a supportive doctor yet. I'm seeing a PCP I've had for 16+ years but I'm not going back to her except for a bad cold or similar. I'm seeing a rheumatologist, a psychiatrist, chiropractor and a pain clinic. None of the doctors have been able to help me at all with pain management. My most pressing day to day issue is excruciating pain. And I admit that when I read about people suffering with this level of pain for years on this board I get more depressed. I don't believe I'm going to make it very long if I can't get some pain relief. I don't say this calmly but I am going to die if I can't get this under control.
I've tried many things and many medications all to no avail. 20 years ago I took ibuprofen for foot pain and it helped. But I've developed a sensitivity to it and now it causes me to retain water, edema. I can't take anything that might cause swelling. I haven't taken many real pain meds in my life but the ones I've tried have had absolutely no effect on me. I've tried at least 8 different antidepressant meds with no effect. I also tried Cymbalta and it had no effect until I tried to get off it - that was the single worst thing ever. I tried Lyrica for about 7 weeks and the side effects were so bad I had to go off, but I felt no relief from it either. I've tried creams with drugs in them that had absolutely no effect, voltaren gel too. I had surgery on my right foot to help the nerves open but it made my foot worse.
Sorry, I'm not trying to write a long boring book. My fingers hurt so badly that I have them wrapped in salonpas sealed with medical tape.
I lost my job just over a year ago so I haven't worked in 14 months. But I was a CPA and my job was super stressful. I'm 46 but I feel like I'm 86. There are so many things I can't do because of my hands and feet. I spend most of my days at home in bed or on the couch. But something has got to change. My diet is pretty darn bad, I don't drink alcohol or soda or use drugs. I do eat dairy, sugar, gluten and red meat sometimes. I got tested for gluten sensitivity and like every single other test it came back negative!
To end on a positive note I am blessed in my husband of 15 years . He's the kindest, funniest man alive and I think will be up for sainthood upon my death. We don't have children (unexplained infertility). We have 2 very old and beloved border collies, 2 young and silly cats and one independent desert tortoise.
Thanks for listening, I'll be around...
I'm extremely frustrated with everything. I don't have a supportive doctor yet. I'm seeing a PCP I've had for 16+ years but I'm not going back to her except for a bad cold or similar. I'm seeing a rheumatologist, a psychiatrist, chiropractor and a pain clinic. None of the doctors have been able to help me at all with pain management. My most pressing day to day issue is excruciating pain. And I admit that when I read about people suffering with this level of pain for years on this board I get more depressed. I don't believe I'm going to make it very long if I can't get some pain relief. I don't say this calmly but I am going to die if I can't get this under control.
I've tried many things and many medications all to no avail. 20 years ago I took ibuprofen for foot pain and it helped. But I've developed a sensitivity to it and now it causes me to retain water, edema. I can't take anything that might cause swelling. I haven't taken many real pain meds in my life but the ones I've tried have had absolutely no effect on me. I've tried at least 8 different antidepressant meds with no effect. I also tried Cymbalta and it had no effect until I tried to get off it - that was the single worst thing ever. I tried Lyrica for about 7 weeks and the side effects were so bad I had to go off, but I felt no relief from it either. I've tried creams with drugs in them that had absolutely no effect, voltaren gel too. I had surgery on my right foot to help the nerves open but it made my foot worse.
Sorry, I'm not trying to write a long boring book. My fingers hurt so badly that I have them wrapped in salonpas sealed with medical tape.
I lost my job just over a year ago so I haven't worked in 14 months. But I was a CPA and my job was super stressful. I'm 46 but I feel like I'm 86. There are so many things I can't do because of my hands and feet. I spend most of my days at home in bed or on the couch. But something has got to change. My diet is pretty darn bad, I don't drink alcohol or soda or use drugs. I do eat dairy, sugar, gluten and red meat sometimes. I got tested for gluten sensitivity and like every single other test it came back negative!
To end on a positive note I am blessed in my husband of 15 years . He's the kindest, funniest man alive and I think will be up for sainthood upon my death. We don't have children (unexplained infertility). We have 2 very old and beloved border collies, 2 young and silly cats and one independent desert tortoise.
Thanks for listening, I'll be around...