Old 09-26-2019, 04:05 PM #1
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City: Longmont
State: Colorado
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Diagnosed: 01/1991
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
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Unhappy Hello

This is my first post. I'm a 72 y/o female, diagnosed with fibromyalgia in 1991 subsequent to a fall on the ice. The most difficult thing for me is this: I have greater than 37 years' experience as a social worker, hold two masters' degrees, am an ordained minister, a certified clinical hypnotherapist and, from 2007 until 2017, maintained a small private practice. My symptoms have worsened to the point where I'm not able consistently to function as a counselor and/or minister. On good days, I could easily meet with 5 or 6 clients. On "fibro" days, the pain, fibro fog, and fatigue knock me on my butt and I'm unable to even make it out of my apartment. I feel soooooo frustrated. If only the "good" and "bad" days were predictable! So, if you're frustrated by a similar situation and have come up with some effective self-talk, I'd love to hear about it! Thanks, and blessings!
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Old 11-06-2019, 01:32 PM #2
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City: Sioux Falls
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Diagnosed: 10/2019
Interest: I am being diagnosed with Fibromyalgia and/or chronic pain.
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Default Re: Hello

Hi. My name is Kristin. I am new to this forum and newly diagnosed last week. I posted two threads one yesterday and one today. So far no replies. I seen you didnt have a reply. I am not even sure if I have correct diagnosis.

That sounds terrible to have all your degrees and have to not be able to have clients. I hurt and just started getting pain and having to stop usually for me its more fatigue. I do medical billing from home and so far so good.

I didnt want you to have no replies. I hope that doesnt happen to me I had questions.
So do you just not take any clients at all anymore?

Kristin
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Old 11-06-2019, 08:47 PM #3
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City: Longmont
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Red face Re: Hello

Hi, Kristin. It's so kind of you to respond to my post. Thank you! Getting the diagnosis is so difficult. Did you have to see several doctors prior to getting a diagnosis? I was very fortunate that my doc recognized my disease quickly. In 1991, when I was first diagnosed, fibromyalgia was relatively unrecognized. My symptoms have worsened over time. At first, pain, fatigue, and fibro fog were the worst symptoms, but I have several others now, in addition to those three. Did your doc rule out lupus and MS?
Wishing you the best! Blessings!
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Old 11-09-2019, 07:50 AM #4
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City: Sioux Falls
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Default Re: Hello

Well I call my diagnosis quick after reading many of these people’s stories. The fatigue was worse around April or May and a doctor checked thyroid and for hashimoto. I also have intermittent blurry vision. It came back fine and no thyroid issue. But by late summer it had all of a sudden got way worse and now Most days I am exhausted by early afternoon but also now add in muscle pain and weakness. Many days I feel like a cane would help because my legs feel weak She was sending me to an endocrinologist and thought I had cushings disease. She really didn’t do any blood work with the new symptoms so I made a new appointment with a new dr. She did tons of bloodwork and got me into a rheaumatologist right away. ( this has all happened within a month). All tests were fine except inflammatory ones were high but no RA markers or autoimmune markers all those were fine. Previously I had read online about a FM blood test so I answered some questions and my insurance information. They sent me a test kit and they had me go get my blood drawn and I got my results and it said 97% positive. Although the rheaumatologist also said after poking me in different places etc said I had it
So I wrote my new primary physician to see if I can get a handicap placard to use on afternoons When it’s hard to walk I can use it. She wrote back “ fibromyalgia is not a diagnosis appropriate for a handicap sticker, in fact increasing exercise will help treat the fibromyalgia and walking further from the parking spot will actually help with the disease” ..... I feel embarrassed because I didn’t know it will help because so far when I am out walking around and doing errands I am worse and more pain by early afternoon. I have no clue if this is true. I wrote back and apologized and said well if that’s the case then maybe I have FM and something else because why is it harder to walk in the afternoon? I have no clue I ordered an infa red heating pad. I haven’t got it yet but warmth feels soooo good. I am confused. I had no idea exercising will help the disease How can you physically do that when you are in pain and muscles are weak. I might put this in the rant area.
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