JLaan
New member
- Joined
- Aug 29, 2015
- Messages
- 1
- Reason
- DX FIBRO
- Diagnosis
- 01/2015
- Country
- CA
- State
- ON
This is my first post.
After years of suffering I finally got the F/CF IBF diagnosis this past January. This disease is life changing to say the very least. I had no idea that it could make me as sick as I have been. Then there was the challenge of convincing people and doctors I was really sick. A former nurse friend said she thought I made up symptoms. People with Fibro do not need to make up symptoms! We live with dozens of them. My husband has Parkinson's disease so he understands having a chronic disease but mine is a challenge for us both at times. Two days ago I felt pretty good and helped clean up the basement and went for a bike ride. Yesterday the pain was so bad I could barely move and today the fatigue hit and I slept through the afternoon and through dinner and I'm ready to go back to bed now.
So hello to all of you dealing with this. I've got some specific questions but I'll try and post them in the correct thread.
After years of suffering I finally got the F/CF IBF diagnosis this past January. This disease is life changing to say the very least. I had no idea that it could make me as sick as I have been. Then there was the challenge of convincing people and doctors I was really sick. A former nurse friend said she thought I made up symptoms. People with Fibro do not need to make up symptoms! We live with dozens of them. My husband has Parkinson's disease so he understands having a chronic disease but mine is a challenge for us both at times. Two days ago I felt pretty good and helped clean up the basement and went for a bike ride. Yesterday the pain was so bad I could barely move and today the fatigue hit and I slept through the afternoon and through dinner and I'm ready to go back to bed now.
So hello to all of you dealing with this. I've got some specific questions but I'll try and post them in the correct thread.