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jasgal

Member
Joined
Oct 28, 2015
Messages
12
Reason
DX FIBRO
Diagnosis
01/2005
Country
US
State
CA
I am new here, I am desperate for help. Sitting at work right now and the pain in my feet, legs and arms are so bad I am crying. Currently taking Cymbalta and it has helped me out so much. But I have been noticing lately it hurts all day non stop. sleep is little and its wearing me down. I know everyone from family, friends and co-works are sick of me. All I can do is barely move and cry in pain. I scared of narcotics because I have family members who are addicts and this worries me. I work out 3-5 days a week, mild with a trainers input. but that is even a nightmare. I wish I could get just some relief, some feeling of being normal.

Advice Please,
 
Hi Jasgal,
Welcome. I am sorry that you are hurting so badly. This is a good place to be. Its safe and everyone I have met has been so very supportive.

Here are a couple of alternative ideas to narcotics:
My absolutely, positively favorite way to help myself hurt less is by doing gentle exercises in a heated pool. It is 92 degrees and like wrapping up in a big, hot, wet blanket. I learned the exercises from a physical therapist who specialized in aqua therapy.

Another idea I have, I got from my niece's friend. They both have Fibro and lots of other autoimmune diseases as well. Anyway, I was told to try FibroResponse. It is found in health food stores. I haven't tried it yet but she swears by it.

There are a lot of supplements that you can take to help too. If you don't have a rheumatologist yet, get your gen. practitioner to give you a referral. Then ask the rheumy what they supplements and the dosage they suggest for YOU.

I just received a steroid shot about 3 weeks ago, I think, and its still helping with the pain :) So there's an idea but the insomnia from it is crazy! :p
I use 5mg of Melatonin to help me sleep at night as well. You would want to figure out a dosage with your doctor though if you chose to go that route.

I also used to go to a psychologist who helped me process all kinds of shtuff in my head. I need to go to one again, if only to give my family and friends a break from my whining. :p

I hope this helps.

Big hugs about your particular family members. That is not easy. I have experienced that as well and had to keep reminding myself that Addiction is also a disease and one that our multiple types of media glamorize; esp. advertisements and Hollywood. Saying that, I know it is a tremendous amount of stress.
Oh, so I remembered a couple more things that may help reduce pain, tension and stress. Hot showers, tub baths, and foot baths with Lavender Epsom's Salts and Clary Sage oil.

Best wishes for a peaceful night :)
 
Thank you Cheryl Ann, a couple yrs back my husband put in a spa tub in the bathroom for me cause of the pain. I do put Epson salt in it, never heard of clary sage oil. I will have to try try it. I am at work now and can barely work. I thank god I have a understanding boss. he allows me to work from home when im really bad. this flare up has been the worst in yrs. 3 weeks and no relief. See my dr tues.
 
Jasgal,
Let us know what your doc says.
Best wishes for a pain free day :)
 
Welcome, maybe u need to knock the training off for a while give your body a change.
Also I'm on tramadol and while I understand completely,my brother was a drug addict. I'm not I don't take it for fun.i take it for pain.so maybe give it some though.
I also have amitripolyn for nerve pain and it really helps me sleep. The less sleep you have the more you hurt.x
 
saw the dr yesterday, she put me back on lyrica and is ordering some blood work. we also spoke of possible going to see a specialist in standford. she said they have a great pain management program there. I haven't worked out since last week cause I couldn't handle the pain anymore. I have been reading up on they tramadol. I have no problem with the drug as I see it helps many when used right. my issue is almost my entire family has some type of addiction, dad alcohol, mom prescription meds, one sister alcohol, other sister street drugs and even my own son street meds. makes me really scared. I am also taking a look at my diet to see what could trigger it too. I am tired of being 44 and not remembering what life was like to be pain free.
 
Best of luck Jasgal :) The Tramadol does work for a lot of people.
 
I am 41 and can so relate to what you are saying, it is a struggle to come to term with the idea that one never really gonna be pain free again. its not a pleasant thought to have. i am also worried about strong meds, beacuase my drive to be painfree is very high, and i am afraid i will take more and more to try to avhieve that. i am not an addict either, but i am worried i will be... i think pain management wil be a good alternative tho. mabe ask for a someone to teach you how to deal with it. i have had this for 20 years, but it has gotten so bad now, that i have to think about giving up working.
and i do believe one of the worst feeling to sit with, is the feeling of not being able to do what you have done for your entire life.

i have been on the national team in Karate, and now i can barely get out of bed, i cant keep awake all day... hehe its a difficult thing to accept..

here i reckon you can vent and complain a little, and that in it self can help...because you can meet understanding.

hugz and kisses to you, and we can all feel your pain... (in some way or another)
 
so I started the Lyrica and I am already feeling so much better. I can actually work a full day and not be wanting to cry. I start back at the gym Monday, but baby steps. Very Slow! I also tried the Clary Sage Oil and I think it has helped. I am nervous about next week. with this I know we never know what will set it off. I want to thank everyone here. at home and work I feel so alone cause no one really can understand this thing.
 
Hi Jasgal,
I am so happy for you that the Lyrica is working! I'm glad that the Clary Sage oil helps. I was nervous about my Murder Mystery Party and developed some lumps on my scalp. They're very itchy and I usually get them when I feel stressed. That's my first warning sign to relax bc I don't want a flare up that's worse than an itchy lumpy head. LMBO that sounds so silly.
My point is that if you are feeling nervous, practice some slow, deep breathing and/or meditation bc as you said, we never know what will set it off.

Peace :)
 
well. I noticed a relief with the lyrica but going back to the gym isn't working out. legs, hands and feet hurt so bad. I just want relief I just want to know what it means to feel no pain. im tired and keep crying. I don't want the weight gain, it makes me sick that I cant even walk on a treadmill without hurting hrs after.
 
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