trayne91
Distinguished member
- Joined
- Oct 30, 2013
- Messages
- 154
- Diagnosis
- 10/2013
- Country
- US
- State
- Wisconsin
Hi everyone. New to the group. Hoping to learn from the more experienced. I was diagnosed with Celiac Disease last May after about 8 years of symptoms. After going gluten free, many side effects subsided, but many did not or only improved, but did not get completely better.
I ended up in the ER in August due to nodules in my stomach that were the size of marbles and soooo sore to the touch and pinching the holy heck out of me every time I moved. They sent me home telling me nothing wrong. Since them the deep aching soreness and cramping, especially in my legs is unbearable and I still get flare ups of nodules in my stomach area from the upper chest, ribs, sides to the groin and they hurt like heck. My obgyn sent me to rheumatologist who didn't seem to know much about Celiac and checked me for Lupus - negative and my Sed Rate which was elevated higher than it was pre-gluten free. I then seen my GI for my yearly exam on the same day who did a small bowel follow-through - normal and checked my Sed Rate - same day so elevated. I ended up at my GP who diagnosed me with fibromyalgia (my obgyn and GI were learning that way as well). I tried Cymbalta on Friday but had a bad reaction to it. Knocked me out for 3 days, dilated my pupils, I broke out all over my face, neck, back. Now I'm on my 2nd day of gabapentin 100mg at bedtime. We'll see how that goes.
It's amazing how many side effects cross with Celiac and Fibro - brain fog, tingling in extremities, cramping, migraines, etc. When I read the symptom list I just couldn't believe it as there are over 300 symptoms for Celiac and many are the same for Fibro. No wonder not all my symptoms were alleviated after going gluten free. I look back now and realize how much I cried as a child with leg pain and how a few years back I got a massage for the 1st time and told people I would never do that again because it hurt so bad. They obviously looked at me like I was crazy. Maybe I had this longer than I thought and the Celiac swelling hid a lot of it over the last years. I'm down about 30 pounds since going gluten free last year, but have not exercised one bit and eat more snack now than before. It was all swelling. I still have an inflammation problem and I know that but hoping I can work on it with my GP since my rheumatologist didn't seem to even think Celiac could cause a headache. I think he was more into arthritis.
Anyway, I am hoping to learn more about this disease and how to alleviate pain. My knee hurts me so bad I can't put my whole body weight on it and have to limp around. My legs cramp like crazy and sometimes feel like pins are sticking in them and they hurt so bad I cry. The nodules I get in my abdomen hurt and make me cry. My arms are sore, the back of my head, my face. I can't cross my legs, cross my arms or even rest my hands on my face let alone get a hug from my husband or accidentally bumped because it hurts, among other things... frankly, it sucks and I'm here for help, tips, tricks, and ideas, that help me get myself back, if that's possible. Thanks for reading.
I ended up in the ER in August due to nodules in my stomach that were the size of marbles and soooo sore to the touch and pinching the holy heck out of me every time I moved. They sent me home telling me nothing wrong. Since them the deep aching soreness and cramping, especially in my legs is unbearable and I still get flare ups of nodules in my stomach area from the upper chest, ribs, sides to the groin and they hurt like heck. My obgyn sent me to rheumatologist who didn't seem to know much about Celiac and checked me for Lupus - negative and my Sed Rate which was elevated higher than it was pre-gluten free. I then seen my GI for my yearly exam on the same day who did a small bowel follow-through - normal and checked my Sed Rate - same day so elevated. I ended up at my GP who diagnosed me with fibromyalgia (my obgyn and GI were learning that way as well). I tried Cymbalta on Friday but had a bad reaction to it. Knocked me out for 3 days, dilated my pupils, I broke out all over my face, neck, back. Now I'm on my 2nd day of gabapentin 100mg at bedtime. We'll see how that goes.
It's amazing how many side effects cross with Celiac and Fibro - brain fog, tingling in extremities, cramping, migraines, etc. When I read the symptom list I just couldn't believe it as there are over 300 symptoms for Celiac and many are the same for Fibro. No wonder not all my symptoms were alleviated after going gluten free. I look back now and realize how much I cried as a child with leg pain and how a few years back I got a massage for the 1st time and told people I would never do that again because it hurt so bad. They obviously looked at me like I was crazy. Maybe I had this longer than I thought and the Celiac swelling hid a lot of it over the last years. I'm down about 30 pounds since going gluten free last year, but have not exercised one bit and eat more snack now than before. It was all swelling. I still have an inflammation problem and I know that but hoping I can work on it with my GP since my rheumatologist didn't seem to even think Celiac could cause a headache. I think he was more into arthritis.
Anyway, I am hoping to learn more about this disease and how to alleviate pain. My knee hurts me so bad I can't put my whole body weight on it and have to limp around. My legs cramp like crazy and sometimes feel like pins are sticking in them and they hurt so bad I cry. The nodules I get in my abdomen hurt and make me cry. My arms are sore, the back of my head, my face. I can't cross my legs, cross my arms or even rest my hands on my face let alone get a hug from my husband or accidentally bumped because it hurts, among other things... frankly, it sucks and I'm here for help, tips, tricks, and ideas, that help me get myself back, if that's possible. Thanks for reading.