danny316
New member
- Joined
- Mar 26, 2015
- Messages
- 4
- Reason
- DX FIBRO
- Diagnosis
- 00/0000
- Country
- US
- State
- IL
Hi everyone! My name is Danielle and I am 22 years old. I am new to this site but I am not new to pain , exhaustion , ager, confusion and so many of the other feelings that come with illness and working with doctors.
Even though lupus is always the first thing that doctors think I have, it not the diagnosis that I am given. My rheumatologist told me that I have a " right now" diagnosis of fibromyalgia In one way is good because lupus is life threatening and then its bad because I'm again at a standstill with everything and I can still develop into it, at least that is what a test result indicates. I feel like I am going around in circles. I think what I am looking for in this site is to hopefully learn as much as I can about this disease, and what better way then to actually communicate with the people who experience it everyday and to read what you guy/girls have to say about your own disease. I do not want to be sick and I do not want pity. All I want is to be able to rest my mind on knowing what is making me sick. I am starting to feel hopeless with ever finding out. I have no one to communicate with who can understand what I go through everyday. I'm not even sure which site I should really be on ,this one or a lupus site. Either way I am completely lost with all of this. I feel like I am being spun around really fast and then told to walk straight. I know there are so many people who go through the same thing. It is a really suffocating feeling to not have an exact diagnosis yet feel horrible all the time. I don't understand fibromyalgia but I know its real- if that's what I have or not. Is lupus and fibromyalgia often confused like this? Has this happened with anyone else? Or was your diagnosis made right away?
Even though lupus is always the first thing that doctors think I have, it not the diagnosis that I am given. My rheumatologist told me that I have a " right now" diagnosis of fibromyalgia In one way is good because lupus is life threatening and then its bad because I'm again at a standstill with everything and I can still develop into it, at least that is what a test result indicates. I feel like I am going around in circles. I think what I am looking for in this site is to hopefully learn as much as I can about this disease, and what better way then to actually communicate with the people who experience it everyday and to read what you guy/girls have to say about your own disease. I do not want to be sick and I do not want pity. All I want is to be able to rest my mind on knowing what is making me sick. I am starting to feel hopeless with ever finding out. I have no one to communicate with who can understand what I go through everyday. I'm not even sure which site I should really be on ,this one or a lupus site. Either way I am completely lost with all of this. I feel like I am being spun around really fast and then told to walk straight. I know there are so many people who go through the same thing. It is a really suffocating feeling to not have an exact diagnosis yet feel horrible all the time. I don't understand fibromyalgia but I know its real- if that's what I have or not. Is lupus and fibromyalgia often confused like this? Has this happened with anyone else? Or was your diagnosis made right away?