Hello I am new to this group and so happy I found it. I am currently on a waiting list to see a Fibromyalgia specialist, so I have not been diagnosed yet but several doctors think I have it, so I am going to share my situation with you and see what you all think.
Sorry if this is long but it has been a long road for me, hope most of you will read it all.
Thanks.
I have had disc problems in my back for years and never thought alot about the back pain because I assumed it was from the disc.
Lots of pain in my sides and upper shoulders and neck. Pain under the breastbones and back of the head, lower back and buttocks.
Then about 6 years ago I had a gran mal seizure, had never had one before and had never had any symptoms of epilepsy. Had several MRI's, Ct scans and EEGs all came back normal.
Was put on seizure medication and left it at that.
About 3 years ago I started having this tingling/burning pain in my pelvic area right down my legs and into my feet. Legs would get so weak I would fall down and go numb that I could not feel them for a bit. Was admitted to hospital and had more tests done including Spinal Tap and MRI`s of the back and spine. They were checking for MS but all tests came back normal. Was using a walker and a cane for while as I had to gain strength back in my legs.
For years I have been having really bad headaches, and dizziness with nausea.
Started having bad eye pain and swooshing sounds in my head still going on as I type this(tinnitis I think it is called) and ear pain for the past several years.
I have been diagnosed with IBS and GERD.
Birsistis in my hips.
Burning headaches and pain down the back of my head into my neck and shoulders.
Severe fatigue, never feel well rested. Always feel exhausted.
Never can get a good nights sleep from all the pain I feel over my entire body.
I have lots of pain in my chest(sometimes feels like I am having a heart attack)
Had lots of menstral problems until I had a complete hysterectomy 2 years ago.
No interest in sex at all.
Dry skin, hair , mouth and eyes.
Panic attacks and anxiety for years.
Have been on and off anti-depressants.
No energy to do anything, used to love walking and being outdoors. Now I have so much pain sometimes I do not even go outside for days.
I feel like every part of my body has some sort of pain or problem with it.
I have not been pain free for over 6 years.
The worst part right now is the tingling in my feet and pelvic area, the headaches and exhaustion.
I have seen at least a dozen different doctors and specialist for all the different pains
and have had so many tests but everything pretty much came back normal.
Then one day my family doctor(she is a saint) said that she was looking at my chart (and believe me it is huge) and was looking at all my symptoms and things going on and said that she thought I might have fibromyalgia. I mentioned this to a couple of my other doctors and they all said they were starting to think the same thing. So my family doctor sent in a referral and as I type this I am still waiting for an appointment with the Fibro clinic about an hour away from where I live. They are saying hopefully I will get in by January 2014. So I just wait in pain and hope that tomorrow is a better day.
Thanks for reading this and to all those going through these same things, I feel your pain and hope and pray that we can all have a better day tomorrow.
Sorry if this is long but it has been a long road for me, hope most of you will read it all.
Thanks.
I have had disc problems in my back for years and never thought alot about the back pain because I assumed it was from the disc.
Lots of pain in my sides and upper shoulders and neck. Pain under the breastbones and back of the head, lower back and buttocks.
Then about 6 years ago I had a gran mal seizure, had never had one before and had never had any symptoms of epilepsy. Had several MRI's, Ct scans and EEGs all came back normal.
Was put on seizure medication and left it at that.
About 3 years ago I started having this tingling/burning pain in my pelvic area right down my legs and into my feet. Legs would get so weak I would fall down and go numb that I could not feel them for a bit. Was admitted to hospital and had more tests done including Spinal Tap and MRI`s of the back and spine. They were checking for MS but all tests came back normal. Was using a walker and a cane for while as I had to gain strength back in my legs.
For years I have been having really bad headaches, and dizziness with nausea.
Started having bad eye pain and swooshing sounds in my head still going on as I type this(tinnitis I think it is called) and ear pain for the past several years.
I have been diagnosed with IBS and GERD.
Birsistis in my hips.
Burning headaches and pain down the back of my head into my neck and shoulders.
Severe fatigue, never feel well rested. Always feel exhausted.
Never can get a good nights sleep from all the pain I feel over my entire body.
I have lots of pain in my chest(sometimes feels like I am having a heart attack)
Had lots of menstral problems until I had a complete hysterectomy 2 years ago.
No interest in sex at all.
Dry skin, hair , mouth and eyes.
Panic attacks and anxiety for years.
Have been on and off anti-depressants.
No energy to do anything, used to love walking and being outdoors. Now I have so much pain sometimes I do not even go outside for days.
I feel like every part of my body has some sort of pain or problem with it.
I have not been pain free for over 6 years.
The worst part right now is the tingling in my feet and pelvic area, the headaches and exhaustion.
I have seen at least a dozen different doctors and specialist for all the different pains
and have had so many tests but everything pretty much came back normal.
Then one day my family doctor(she is a saint) said that she was looking at my chart (and believe me it is huge) and was looking at all my symptoms and things going on and said that she thought I might have fibromyalgia. I mentioned this to a couple of my other doctors and they all said they were starting to think the same thing. So my family doctor sent in a referral and as I type this I am still waiting for an appointment with the Fibro clinic about an hour away from where I live. They are saying hopefully I will get in by January 2014. So I just wait in pain and hope that tomorrow is a better day.
Thanks for reading this and to all those going through these same things, I feel your pain and hope and pray that we can all have a better day tomorrow.