crystal_price
Member
- Joined
- Jan 12, 2014
- Messages
- 15
- Reason
- DX FIBRO
- Diagnosis
- 11/2013
- Country
- US
- State
- OH
Hi everyone! My name is Crystal. I unfortunately was diagnosed with Fibro in November. I kinda knew I would eventually be diagnosed with fibro because my mom has been suffering with it for 10+ years. I have been going through some sort of illness for the last five years. If it wasn't some mystery aliment that I couldn't describe well enough for a doctor to take seriously then I was catching whatever virus or bug that was in the Dayton area.
My journey with fibro went into overdrive about two years ago. I was having horrific chest pains. I was admitted to the hospital for three days to evaluate my heart. I was scared to death. Come to find out it was coastrochondritis. I had never heard of that and couldn't believe that inflammation in the chest wall would have felt like that. That's when the merry-go-round of meds started. Steroids, vitamins (I was extremely vitamin d deficient), muscle relaxers, and eventually gabapentin.
Gabapentin was just as evil as this disease is. Last year, out of know where, I just started to feel strange. I couldn't put it into words. My husband was very confused about what was happening to me. I felt mentally lost and I physically felt like I had this strange energy going throughout my body. I felt like I had to move different parts of my body to release this strange feeling. Within an hour of this starting, I had my first seizure. I was rushed to the hospital, unconscious having a grand mal seizure. Of course, since I had no history of seizures before it had to be related to stress. More or less it was all in my head! I had multiple seizures weekly for 6 months before I was taken off all my medications. I haven't had one since. You honestly wouldn't think an anti-seizure medication would cause seizures but they do!
It took me some time to begin to feel human again. Almost the same time my brain started to think somewhat normally and my body began to move and feel again the fibro symptoms reared their ugly heads. I guess fibro wanted me to know how ugly of a disease it is because it wanted to attack my abdomen. I went to two specialists, had one surgery, multiple tests, new medications, and doctors who didn't have a clue what was wrong with me...so the easy answer was stress. Who wouldn't be stressed?
After all of this, my life seemed to be turned upside down. I was so angry, frustrated, and sad. I was pushing everyone away from me. I began questioning myself. Was all of this in my head? Did I have a mental illness that I didn't know about? Was I just out of shape? I questioned every aspect of my life. I actually thought death would be better than what I was dealing with on a daily basis. It all just seemed too hard. I couldn't find joy in anything. After many fights and almost leaving my husband, I decided to go back to counseling. I hadn't been in over a year. My counselor was shocked at the downward spiral I was on. He said it was physically noticeable but mentally and emotionally I was a different person. He said I was extremely depressed. I don't know why that came as such a shock. Who wouldn't be depressed? He got the ball rolling for recovery for me. He referred me to two great doctors who actually listened to me. Who prescribed the right medications and tests. Who actually took the time to discuss this nasty evil disease with me.
I'm two months into having a diagnosis and I'm still angry and sad. I go to bed every night hoping I will wake up the next morning as my old self but never do. I still don't know how to pace myself or listen to my body. I still believe I'm superwoman and can do everything. I mourn for the life I could of had if I never had this. It's a struggle every day physically and mentally for me but I'm still trying.
I wish this disease upon no one and I'm saddened by the lack of support for those suffering from this. I am glad I was able to find this forum to get help for myself and maybe help someone else! :razz:
My journey with fibro went into overdrive about two years ago. I was having horrific chest pains. I was admitted to the hospital for three days to evaluate my heart. I was scared to death. Come to find out it was coastrochondritis. I had never heard of that and couldn't believe that inflammation in the chest wall would have felt like that. That's when the merry-go-round of meds started. Steroids, vitamins (I was extremely vitamin d deficient), muscle relaxers, and eventually gabapentin.
Gabapentin was just as evil as this disease is. Last year, out of know where, I just started to feel strange. I couldn't put it into words. My husband was very confused about what was happening to me. I felt mentally lost and I physically felt like I had this strange energy going throughout my body. I felt like I had to move different parts of my body to release this strange feeling. Within an hour of this starting, I had my first seizure. I was rushed to the hospital, unconscious having a grand mal seizure. Of course, since I had no history of seizures before it had to be related to stress. More or less it was all in my head! I had multiple seizures weekly for 6 months before I was taken off all my medications. I haven't had one since. You honestly wouldn't think an anti-seizure medication would cause seizures but they do!
It took me some time to begin to feel human again. Almost the same time my brain started to think somewhat normally and my body began to move and feel again the fibro symptoms reared their ugly heads. I guess fibro wanted me to know how ugly of a disease it is because it wanted to attack my abdomen. I went to two specialists, had one surgery, multiple tests, new medications, and doctors who didn't have a clue what was wrong with me...so the easy answer was stress. Who wouldn't be stressed?
After all of this, my life seemed to be turned upside down. I was so angry, frustrated, and sad. I was pushing everyone away from me. I began questioning myself. Was all of this in my head? Did I have a mental illness that I didn't know about? Was I just out of shape? I questioned every aspect of my life. I actually thought death would be better than what I was dealing with on a daily basis. It all just seemed too hard. I couldn't find joy in anything. After many fights and almost leaving my husband, I decided to go back to counseling. I hadn't been in over a year. My counselor was shocked at the downward spiral I was on. He said it was physically noticeable but mentally and emotionally I was a different person. He said I was extremely depressed. I don't know why that came as such a shock. Who wouldn't be depressed? He got the ball rolling for recovery for me. He referred me to two great doctors who actually listened to me. Who prescribed the right medications and tests. Who actually took the time to discuss this nasty evil disease with me.
I'm two months into having a diagnosis and I'm still angry and sad. I go to bed every night hoping I will wake up the next morning as my old self but never do. I still don't know how to pace myself or listen to my body. I still believe I'm superwoman and can do everything. I mourn for the life I could of had if I never had this. It's a struggle every day physically and mentally for me but I'm still trying.
I wish this disease upon no one and I'm saddened by the lack of support for those suffering from this. I am glad I was able to find this forum to get help for myself and maybe help someone else! :razz: