besdansky603
New member
- Joined
- Sep 22, 2013
- Messages
- 1
- Diagnosis
- 08/1997
- Country
- US
- State
- NY
I am new to this forum. I have lived with fibromyalgia and sjogrens syndrome for about 23 years. Recently scleroderma was added to the mix. I have been so blessed to have a loving, caring family around me. It is concern for my 15 year old daughter that brings me here. For 4 years I have watched her exhibit signs of FMS or CFS, but have been unable to get any kind of help for her. She has a positive ANA, severe migraines, a few episodes of numbness,dizziness/fogginess and severe fatigue. Her last rheumy noted a rash and said no fibro but possibly future lupus? That doesn't help us for right now. She almost passed out after gym class. Why is it so hard to get help? Has anyone else experienced this?