Shell63
New member
- Joined
- May 29, 2013
- Messages
- 1
- Diagnosis
- 06/2007
- Country
- UK
- State
- Tyne and Wear
Hello, I've just joined this site and I'm very excited about being able to talk to people who can empathise rather than sympathise.
I was diagnosed with Fibromyalgia/CFS/Neuropathy in my legs from my feet to my hips and in my arms from my fingertips to my shoulders aprrox 6 - 7 years ago.
I've gradually come to terms with my conditions. I take morphine everyday in the form of MST and also have Oramorph for when I have flare ups.
My partner [and my carer] has recently split up with me after 7 years together. Suddenly, I am left with a house to clean, all my hot cooking to do, and all the other things that come with running a house.
Everytime I do something i.e. the clothes washing, my fingers, arms hands and shoulders hurt as well as my legs and I have to spend all of the following day in bed recovering because of the pain I still have and because I am exhausted. Unfortunately, I cannot have these rest days anymore. I am frightened to go to sleep at night in case anyone breaks into my property [I live in a bungalow] and so sleep during the day however, I have two cats who need constant attention - well, every 2 hours they need to be fed and let out and then let back in again and so the longest I get to sleep is 2 hours at a time.
I hadn't realised how exhausted I was until I went out for a meal with a friend last Tuesday and collapsed due to exhaustion. I spent the next 2 days in bed, opening a window in the bathroom for the cats to get in and out of the house and feeding them very two hours. Over those 2 days I didn't eat, drink or take any medication as I was so ill and confused. It has been the same for the last couple of days too. My ex visited me after I'd collapsed and I must have looked awful as he's decided to stay tonight so that I can get some sleep and he'll go home tomorrow . Hopefully, I'll sleep well tomorrow as I don't have to worry about my cats.
You may think that I fuss the cats too much but once I was let go from work because of my Fibro etc prevented me from attending work as much as I should [ I appealed against their decision and now I am in receipt of a medical pension because of my disability] only have 2 friends who bother with me, one of whom is my ex, therefore my cats are my company. They bring me joy and laughter and I would be lost without them. They actually give me a reason to get up when all I want to do is go to sleep forever when the pain is too bad.
I came across a saying yesterday which sums me up - 'I used to run with the hare but now I envy the tortoise'
I have to look for a new carer but how do I choose? I don't like having strangers in the house and being disabled with very poor mobility and poor balance I am scared that someone might hurt me.
You can probably tell that I am very down at the moment. All I want is to be happy again and for my pain to reduce to an acceptable level.
I am sorry to moan so much but I was asked to write how Fibro, CFS etc affects my everyday life and unfortunately, this is how at the moment.
If anyone can help me see that things will get better or have any suggestions on how I can improve my situation I would be eternally grateful.
Thank you for taking the time to read this post.
PS How do I start a blog on here? I've found the page but don't know how to access the page which will allow me to write. All help greatly appreciated.:-(
I was diagnosed with Fibromyalgia/CFS/Neuropathy in my legs from my feet to my hips and in my arms from my fingertips to my shoulders aprrox 6 - 7 years ago.
I've gradually come to terms with my conditions. I take morphine everyday in the form of MST and also have Oramorph for when I have flare ups.
My partner [and my carer] has recently split up with me after 7 years together. Suddenly, I am left with a house to clean, all my hot cooking to do, and all the other things that come with running a house.
Everytime I do something i.e. the clothes washing, my fingers, arms hands and shoulders hurt as well as my legs and I have to spend all of the following day in bed recovering because of the pain I still have and because I am exhausted. Unfortunately, I cannot have these rest days anymore. I am frightened to go to sleep at night in case anyone breaks into my property [I live in a bungalow] and so sleep during the day however, I have two cats who need constant attention - well, every 2 hours they need to be fed and let out and then let back in again and so the longest I get to sleep is 2 hours at a time.
I hadn't realised how exhausted I was until I went out for a meal with a friend last Tuesday and collapsed due to exhaustion. I spent the next 2 days in bed, opening a window in the bathroom for the cats to get in and out of the house and feeding them very two hours. Over those 2 days I didn't eat, drink or take any medication as I was so ill and confused. It has been the same for the last couple of days too. My ex visited me after I'd collapsed and I must have looked awful as he's decided to stay tonight so that I can get some sleep and he'll go home tomorrow . Hopefully, I'll sleep well tomorrow as I don't have to worry about my cats.
You may think that I fuss the cats too much but once I was let go from work because of my Fibro etc prevented me from attending work as much as I should [ I appealed against their decision and now I am in receipt of a medical pension because of my disability] only have 2 friends who bother with me, one of whom is my ex, therefore my cats are my company. They bring me joy and laughter and I would be lost without them. They actually give me a reason to get up when all I want to do is go to sleep forever when the pain is too bad.
I came across a saying yesterday which sums me up - 'I used to run with the hare but now I envy the tortoise'
I have to look for a new carer but how do I choose? I don't like having strangers in the house and being disabled with very poor mobility and poor balance I am scared that someone might hurt me.
You can probably tell that I am very down at the moment. All I want is to be happy again and for my pain to reduce to an acceptable level.
I am sorry to moan so much but I was asked to write how Fibro, CFS etc affects my everyday life and unfortunately, this is how at the moment.
If anyone can help me see that things will get better or have any suggestions on how I can improve my situation I would be eternally grateful.
Thank you for taking the time to read this post.
PS How do I start a blog on here? I've found the page but don't know how to access the page which will allow me to write. All help greatly appreciated.:-(