Old 09-28-2014, 05:00 PM #1
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Interest: I am being diagnosed with Fibromyalgia and/or chronic pain.
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Talking Feel like a Newbie and a Veteran ?!

Need a little support. Going tomorrow to find out what my "treatment plan" is going to be. Even though I was "officially" diagnosed with Fibro 3 weeks ago, I have lived with it since at least 2005 or before. After research, I think I have had it since I was a kid. Although I have been praying for years for a diagnosis, Now that I have Ins., I admit I am a little nervous! On one hand, I can't wait to see if my Rheumy really can get my pain level down, and help with the fatigue,fibro fog,stiffness(I tested neg.for any arthritis)and etc. I am actually taking my poor husband along in case I get Foggy Froggy and can't get back home! Lol! All of this new stuff makes me feel like a Newbie, but I also feel like a Fibro Veteran from tolerating it sooo long. I have burning,aching pain that is mainly worse in my neck,shoulders,lower back,hips,etc. that engulfs my whole body 24/7. I get what I affectionately(Not!)call"Burning Neck Migraines" that ended me in the ER once,where they gave me morphine and Phenergan. My Dentist says I am describing bad TMJ that I have. I have Lived with sinusitis. Iv'e been on antihistamine of one or the other since I was 13 to prevent hives. I have asthma. I get stressed,drown in Fibro Fog sometimes,and grouch at my hubby. I will turn 50 this year. That said, Does anyone remember your first "treatment plan"? I know everyone is different, but wondering what I should/can expect. I should also mention that I like my Rheumy,and I think I can trust.He is very gentle. Thanks for any input! Soft hugs!
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Old 09-29-2014, 04:41 AM #2
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Default Re: Feel like a Newbie and a Veteran ?!

Hey there HappyToBeAlive, welcome to the forum. I can't imagine what you're going through, but I know you'll get a lot of support here, so I hope you stick with us and that we can help you step by step.
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Old 10-13-2014, 08:54 AM #3
Ramona Ramona is offline
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Default Re: Feel like a Newbie and a Veteran ?!

Hi there,
I'm newly diagnosed... I'm in Canada so there are fewer drugs approved for this condition. I took one drug, Lyrica but it upset my stomach.
My Family doctor is following me for now although I've been referred to a highly specialized research clinic at a hospital here. The wait is a bit long but it will be worth it.
For now, my doctor has advised me to pace myself, listen to my body and to do stretching every day for 3-4 minutes, which really helps. I'm off work with pay (disability) so I have a lot of time to practice pacing, resting a lot. I have begun adding Isometric stretches which build strength. Another suggestion for this condition is Graded Exercise and Cognitive Behaviour Therapy. I am doing both and I'm about to book a Physiotherapist at a clinic to help with Graded Exercice. My psychologist has helped me accept this condition and learn to live with it... although I was just diagnosed a month ago.
Hope that helps.....
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Old 12-04-2014, 02:00 AM #4
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Default Re: Feel like a Newbie and a Veteran ?!

Welcome to the forum.
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Old 12-15-2014, 04:45 PM #5
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Welcome. Cap and badge to our very exclusive club are in the post hehe
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