Old 03-22-2009, 03:57 PM #1
longroad
Guest
 
Posts: n/a
longroad
Guest
Posts: n/a
Default Neuropathy pains

Has anyone experienced neuropathy type pains when diagnosed with ALS?
 
Old 03-22-2009, 04:16 PM #2
BethU
Guest
 
Posts: n/a
BethU
Guest
Posts: n/a
Default

I'm not sure what neuropathy type pains would feel like ... would that be burning pain?

In any case, I haven't experiened any kinds of pain till now, and these are muscle aches.
 
Old 03-22-2009, 08:24 PM #3
longroad
Guest
 
Posts: n/a
longroad
Guest
Posts: n/a
Default

Neuopathy a painful sensation that's just under the skin. Mine can sometimes start out like a itching or irritating sensation that turns into a sharp pain.
 
Old 03-23-2009, 09:35 AM #4
longroad
Guest
 
Posts: n/a
longroad
Guest
Posts: n/a
Angry And....

That was just a brief description of neuropathy type pain. I have got pains before that feel like someone is sticking me with a fire hot poker. My last EMG was normal even though when they got done with my legs and moved up to my arms my legs were flayling around on the table like a fish out of water, and I could not control it or stop it.
 
Old 03-23-2009, 11:49 AM #5
planningguy
Guest
 
Posts: n/a
planningguy
Guest
Posts: n/a
Default

Longroad,

I am certainly far from an expert, and don't have ALS, but all of the discussion I have seen to this point has indicated that neuropathic pain points away from ALS. PALS do seem to suffer aches and pains related to muscle soreness, cramping, joints contracting, and reduced mobility; but neuropathic pain seems to be very rare.

Minus the arm flailing I would almost wonder fibro, but I am at a loss. You mention an EMG and are obviously seeing some specialists. Hopefully, they can give you some direction.

Best wishes,

Robert
 
Old 03-23-2009, 03:42 PM #6
longroad
Guest
 
Posts: n/a
longroad
Guest
Posts: n/a
Default

Muscle spasms can cause neuropathy pain. I looked it up in the medical dictionary under neuropathy. It's does not only occur in diabetics or alcoholics.
 
Old 03-23-2009, 03:55 PM #7
hopingforcure
Guest
 
Posts: n/a
hopingforcure
Guest
Posts: n/a
Default

Just a guess, not a medical opinion. But the nerve conduction study make's everyone really jumpy after it is completed. I remember watching my legs shaking like crazy after the nerve conduction, first part of the emg.. That could explain what you describe.
 
Old 03-23-2009, 07:12 PM #8
longroad
Guest
 
Posts: n/a
longroad
Guest
Posts: n/a
Default

Thanks for the info. Have had EMG's in the past and never had a reaction like that. Doctor told me she was afraid that would happen, but she didn't tell me why.
 
Old 03-23-2009, 07:37 PM #9
wright
Guest
 
Posts: n/a
wright
Guest
Posts: n/a
Default

Longroad

Pain from muscle spasms is not the same as neuropathic pain. Neuropathic pain is anything from burning and/or wrenching and/or pins and needles and/or etc., etc. but not muscle spasms . . . and that pain is caused by nerve inflammation, nerve compression, severed nerves, etc. In other words, pain caused by problems with sensory nerves and not with muscles. ALS is a disease of motor neurons and not sensory neurons. As Robert said, neuropathic pain is rare with ALS and typically causes neuro's to pursue a differential diagnosis.

I hope that helps . . . oh, and STOP reading medical dictionaries!
 
Old 03-28-2009, 12:39 PM #10
longroad
Guest
 
Posts: n/a
longroad
Guest
Posts: n/a
Default

I never said that muscle spasm and pain and neuropathy were the same thing.
 
Old 03-28-2009, 01:06 PM #11
crystalkk
Guest
 
Posts: n/a
crystalkk
Guest
Posts: n/a
Default

longroad,

I'm alittle confused are you diagnosed with ALS? It does say it in your profile.
 
Old 03-28-2009, 03:55 PM #12
planningguy
Guest
 
Posts: n/a
planningguy
Guest
Posts: n/a
Default

Longroad,

I think what Wright was trying to explain was that muscle spasm pain and neuropathic pain are different. In your post you said, "Muscle spasms can cause neuropathy pain..." Wright was just clarifying.

I hope all is well.

Best wishes,

Robert
 
Old 03-28-2009, 04:16 PM #13
crystalkk
Guest
 
Posts: n/a
crystalkk
Guest
Posts: n/a
Default

(I'm alittle confused are you diagnosed with ALS? It does say it in your profile. )

What i meant to say was it doesn't say it in your profile, it was too late to edit my post.
Sorry about that.
 
Old 08-22-2009, 12:13 AM #14
longroad
Guest
 
Posts: n/a
longroad
Guest
Posts: n/a
Default

I have been diagnosed with Paraneoplastic Syndrome. The symptoms from Paraneoplastic Syndrome often mimic ALS. That is usually why they think it's ALS first. Paraneoplastic Syndrome is so rare very few doctors will ever see a case in their lifetime. They distinguish the two by the rippling of muscles and by doing blood test to fing the Paraneoplastic Antibodies. And for the record all doctors use medical dictionaries. They are requierd text books and that is one of a physician's learning tools. I most certainly want my doctors using them.
 
Old 08-22-2009, 04:33 AM #15
GlenBrittle
Guest
 
Posts: n/a
GlenBrittle
Guest
Posts: n/a
Default

Hey Longroad,

Ahh , its a little clearer now.

Good News , you do not have ALS !
Bad News , you are suffering.

I think the medical reference comment was aimed at people that try to self-diagnose themselves and end up finding way to much information and following a wrong path. There are a lot of these people. Yes , doctors do use them and are trained for this.

As I do not know much about your diagnosed, all I can offer is to treat the symptoms.

Glen
 
Closed Thread

Tags
als, als?, neuropathy, pain


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

 
All times are GMT -5. The time now is 07:45 AM.
Copyright © 2017