Firo30

New member
I have an appointment with a Lyme specialist and got names of which physicians from the website Ilads I have appointment Feb 6. My daughter said when searching Lyme can mimic Fibromyalgia also. After tons of reading and talking thru IG with someone who had same symptoms and has Lyme. She explained to use only a Lyme specialist. So I will wait to see one. Seems like basic protocol is some ELISA test but it gives such high false negatives. I will find out more during my appointment. After reading sure sounds like anyone with Fibromyalgia should rule out Lyme and not just with ELISA test
Yes ELISA Tests for Lyme disease is not always accurate , it has to be repeated many times before getting an accurate diagnosis , anyway hope you don’t have Lyme disease but better to be sure
 

james192

New member
I did the physio for years. it is not a cure, and physio can actually do some harm, if the physio doesn't know about the points of pain, or microtears in the muscle. we lack restorative sleep, so our bodies do not repair during sleep.< I got tired of going through physio repeatedly without doing much good. < whatever works for you, but I find stretching properly is as good.
 

james192

New member
I asked for a referral to a neurologist to make some newer symptoms are not MS. Which she did give me. My appointment is Dec 18th. I think I will research see if I can find a physician who may also have Fibromyalgia. Or at least someone who understands better. I don’t believe the philosophy that walking further and exercising makes it better from what I have read from others that if that was the option to get rid of the pain etc we would all be tri athletes and in serious training. Im not saying not to exercise but when you are in pain there is no way I can hardly walk.
 

james192

New member
the FM routine getting sent to every specialist to be told its FM. FM has so many symptoms similar to many medical health problems. I started out saying, "it can't be FM causing all this", and walked the FM path through numerous doctors. frustrating