Daylilly
New member
- Joined
- Feb 9, 2017
- Messages
- 7
- Reason
- DX FIBRO
- Diagnosis
- 00/0000
- Country
- CA
- State
- ON
Hello, I am new here. I am not new to fibro. I am also not new to auto-immune illness.
I am learning though now that often it is the fibro that disrupts my life the most.
I have only just learned that fibro can be the cause of mood changes.
For over a month I have been experiencing the terrible pain and fatigue.
I can do nothing I am too tired. I can't sleep I hurt too much.
Then there is the confusing emotional upset that feels so awful
I feel anxious and then because I can't figure out where it's coming from I feel scarred. I think am I losing my mind? To make things worse it always seems the worst at night and when I am alone. I guess it's because through the day my mind is occupied with other things so my mind can't dwell on things.
I deal with allot health wise, hypothyroid, Addison's, sjogren's, immuno deficiency and lupus and finally since the spring, ITP/low platelets caused by my wonky immune system. Tons of prednisone for months did not help so chemo was the next step. I have done three rounds in January with one more to go.
So the stress of the last month let alone the past year...well it's been too much I think. Thus the fibro/cone give tissue/lupus flare.
I have a great rheumy who I saw today. She confirmed the fibro flare with the
Pressure points and history. I was given some muscle relaxants and some anti-inflamitories to try. I also have a small arsenal of other medications I can use.
But you know nothing really to handle the anxiety/emotional stuff.
Pain wears you out. Not sleeping wears you out so pain management is very important. But I sure would like to feel at peace inside too.
I ask what do you do for this difficult symptom.
Thanks so much. Daylilly
I am learning though now that often it is the fibro that disrupts my life the most.
I have only just learned that fibro can be the cause of mood changes.
For over a month I have been experiencing the terrible pain and fatigue.
I can do nothing I am too tired. I can't sleep I hurt too much.
Then there is the confusing emotional upset that feels so awful
I feel anxious and then because I can't figure out where it's coming from I feel scarred. I think am I losing my mind? To make things worse it always seems the worst at night and when I am alone. I guess it's because through the day my mind is occupied with other things so my mind can't dwell on things.
I deal with allot health wise, hypothyroid, Addison's, sjogren's, immuno deficiency and lupus and finally since the spring, ITP/low platelets caused by my wonky immune system. Tons of prednisone for months did not help so chemo was the next step. I have done three rounds in January with one more to go.
So the stress of the last month let alone the past year...well it's been too much I think. Thus the fibro/cone give tissue/lupus flare.
I have a great rheumy who I saw today. She confirmed the fibro flare with the
Pressure points and history. I was given some muscle relaxants and some anti-inflamitories to try. I also have a small arsenal of other medications I can use.
But you know nothing really to handle the anxiety/emotional stuff.
Pain wears you out. Not sleeping wears you out so pain management is very important. But I sure would like to feel at peace inside too.
I ask what do you do for this difficult symptom.
Thanks so much. Daylilly