Thread: Aussie alone
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Old 09-02-2008, 03:05 PM #8 (permalink)
awieleba
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awieleba
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what do you do when you dont have diagnosed and have told family and now they think you have fibro or something because a doc can pin point?

We were at a fair with kids, walked there and then walked and stood around then walked back. My feet and legs were hurting amd my leg was tight so I didnt want to go back for the 2nd trip there. my family is like 'whats the matter with you?' they know everything but since the biopsy think it is nothing and said 'oh thats right, you have something that even als specialist cant find'! I know they (mom,dad,sisters etc) love me, but this is infuriating! They know how active i was, and this is not like me. It really made me angry and sad.

I dont say anything to my friends or nieghbors except that I have an autoimmune something going on. They suspect as they ask me to play tennis and I use to play like all the time.

take care,

april