Recent content by BunBun34

I also had mono and test positive for Eppstein Bar virus at high levels. But mine are only antibodies that indicate past infection. There are other antibodies that indicate current or active infection. When I have a flare, it feels like when I first got sick with the mono. Fatigue, muscle pain...

It is hard to find the right balance. I'm taking 10-20 mg of amytriptyline at night and flexiril as needed. I also take Aleve often for inflammatory arthritis. I'm not sure which of my symptoms are what, but the ami seems to help me sleep more deeply and the flexiril lessens my muscle pain and...

I would never listen to a doctor when it comes to specifics about exercise. They receive very little training on it besides the whole " it's good for the body to exercise". A good physical therapist and a trainer experienced with people with chronic pain conditions. His comment on weight...

I had these symptoms before starting any meds. Still don't know if it is fibro or something else. Had some neuro tests that all came out ok. Doc called it a physiologic tremor. Not to be confused with psychological, lol. I also get numbness/tingling and loss of coordination. The crappy thing is...

I appreciate reading everyone's experiences and insight. I just joined this forum as I'm finally admitting I have fibro and recognize the toll it had taken on my life. I would disagree to an extent that it's not degenerative as that term to me implies a worsening of a condition. My pain and...

Wineisfine, Can I ask how u went about getting disability? Have you had hospitalizations? I'm getting to the point where I'm only deteriorating with severe flares 2-3x a month. I'm sure it's directly related to the type of work I do. My boss has been understanding, but it's been tough. I'm...