Recent content by crystal_price

I haven't gone to the papers yet but that's my next step. Thanks!

I started on meetup.com and invited everyone I personally knew. It's kinda grown from there. I also added a page on facebook to get our name out there. I had a lot of help from friends and family.:lol:

I have registered my new support group here but was wanting some more suggestions on how to get the word out to get new members. I posted it to my facebook page as well. Maybe i'm just inpatient.

Wow...Trellum you just brought tears to my eyes! That was very nice to say. I really didn't look at what I am attempting to do as admirable. I have talked to the last person who attempted a group here and she said it was too hard because people wouldn't show when they said they would. To me that...

Thank you David! I honestly didn't even think about that...happy to know people have my back in trying to get the word out! Thanks again!

I wanted to inform anyone around the Dayton, Oh area that I've started a face to face support group through meetup.com. It's still in the beginning phase but we are planning our first meeting for March 1. We can be found through meetup. Our group name is Dayton Fibro Fighters. We welcome anyone...

I did eventually let him know what I thought but in a very non productive way. It was out of anger and feeling hurt. I know considering what he's personally going through with the loss of his mom (who had ocpd not cancer) was insensitive on my part. He didn't realize what he said and how I took...

I need to vent.....I was having a conversation with my husband yesterday about fibromyalgia and still trying to accept my diagnosis when he said its not like you have cancer. That sentence just keeps replaying in my head. Obviously it's not like accepting I have cancer but it's not like I have a...

Thank you!

My diagnosis of fibro was confirmed in Nov. I was so relieved to have a diagnosis that I didn't look at the big picture of a life long battle with pain, fatigue, and migraines. I'm sure there is a process that goes along with accepting this but I have no idea where I am in that process. Is...

Thank you...I really appreciate it! The superwoman act is so hard to let go of. I feel lazy or I'm not contributing to our family. I've gotten better over the last year. My body kinda forced me into it. Seizures tend to take away your ability to function. I almost feel like I need to make up...

Thank you all so much for your advice...I really feel strongly that this is something needed. The fibro population is growing but support and education is something that isn't available. We suffer in silence with no real genuine support. Our family, friends, doctors, and therapists can only do...

I too haven't had any testing done and don't think I want to. I'm scared to know how bad I have truly gotten. I've had more problems recently remembering little things. I have a huge problem carrying on a conversation with anyone. It's especially hard when I see that disappointed confused look...

Hi everyone! As I began this new journey of accepting I have fibro, I noticed that there really isn't any face-to-face support groups in my area. Is this common in most areas? I understand because of the unpredictable nature of fibro can make it very difficult to plan and attend meetings but I...

Hi everyone! My name is Crystal. I unfortunately was diagnosed with Fibro in November. I kinda knew I would eventually be diagnosed with fibro because my mom has been suffering with it for 10+ years. I have been going through some sort of illness for the last five years. If it wasn't some...