Yes! I have been experiencing this for about a year and a half now. Every doctor blows it off! My ortho thought at one point I had ankylosing spondylitis but ruled it out due to negative blood tests. It is so severe after I wake up or am inactive for long periods of time. I take lots and lots of...
Dancingwithfibro, this is absolutely amazing. I think all of us here understand your every word. It's a wonderful idea to write a letter to fibro! Fibro entered my life at the age of 25 and I get really depressed thinking of what the rest of my life will be like. I sometimes have a hard time...
Hello all, just curious...what are your top 3 symptoms of Fibro (consistent symptoms, on most days)?
Mine are (on most days):
Pain
Fatigue
Stiffness (mainly in the am)
Also, my worst times of the day are early morning and late night.
I am going to help you keep this one at the top. I started my log book today and it felt great! Often we experience different and/or weird symptoms and always mean to speak with the doctor about it but when you sit face-to-face with them you can't always remember. So keeping a log will really...
Hi PattiD! The replies from this post are helping me as well! It makes me feel better to know its not just me experiencing this. I am 28 and have been experiencing it since I was around 25. But luckily, it is one of the fibro symptoms that I can actually handle...considering all of the other...
Minilandrover, that all makes perfect sense! I have accepted it by now and understand that it's just part of my life now. I do understand about being in a trance from meds; however, at that point in time I wasn't taking any meds...but it certainly felt like I was! Thanks for the info!
This is an amazing post! Cmetryme, the two posts I've read by you are going to be extremely helpful for me. It's been so hard explaining what fibro is to those who don't know. You rock!
I have done a journal in the past but not this in depth. I like it a lot! I am 28 and I think it's good that I start now. I think it will be interesting to see how things change over the years...because I am hopeful that I can get some much needed help soon! I hate to think I will be in pain...
I understand that! It sometimes get a shocking feeling sometimes when I'm frightened.
It seems like I am sensitive to a lot. Loud noises, bright lights, hot/cold, etc. I get extremely irritable about little things and I think it's due to my pain level and the sensitivity from pain causes the...
Does anyone else get really jumpy or frighten easily when there is a loud noise? Loud and unexpected noises really shake me up. My senses are extremely sensitive. I remember one day I was driving and a motorcycle drove by me and I was so upset for quite some time and my heart was racing so fast...
Hello all! I am a 28 yo female and have just recently been diagnosed with FMS and MPS. I have been in a chronic state of pain for the last 2.5 years and, as many of you know, it's been a long ride to get a diagnosis. I have seen a PCP, orthopedist, neurologist and pain management doctor. I...
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