Recent content by NytViolet

I've had them (benign fasciculations) for 18 years...they began the same time as Fibro did. I feel it's nerve hyperexcitability and spasticity. For instance, in the mornings I'm very stiff. When I stretch, it irritates the muscle fibers and gets them jumping.

I have similar issues, and my left side in particular feels weak. I also get benign fasciculations (random twitches and muscle movements). FM is painful and often frightening. I still work, but was hugely glad to be off today. I awoke feeling awful and spent most the day napping...sometimes we...

Sounds like you are superhero! That is actually good... What you DONT want is decreased signal.

I've had fibro 17 years, but even on my worst days cannot imagine comparing it to ALS which is the cruelest, most awful disease on the planet and (to date) has no cure. While I'm certainly in favor of research for fibro/CFS/ME, I pray nightly that a cure for ALS will be found. If you are...

Junebug, I like your spirit lol... We'd all do well to remember the various tricks Fibro can play on our bodies and minds. From numbness, feelings of weakness or shakiness, tingling, buzzing, twitching, brain fog, cramps, etc. -- there are (I believe) over 50 symptoms associated with FM, and it...

Yes I have spasms and fasciculation that drive me nuts. I only have 7 days of short term disability remaining then must return to work. I have yet to get the epidural injection I was prescribed because they referred me to a pain management doctor who does not take my insurance. If I thought I...

You're not alone. Sounds like you have allodynia (sp?) which means extreme sensitivity to touch...it's caused by nerve hyperexcitability. Symptoms with Fibro tend to wax and wane, so if you have any control over your schedule, that would be a blessing (there are some days that getting up and at...

I can relate. Although I've had Fibro for 17 years, I'm now dealing with degenerative changes in my cervical and lumbar spine (I'm 49) and perimenopause that have exacerbated symptoms to include weak shaky arms and legs (worse on left), horrible fatigue and resultant anxiety. I'm on short term...

Visit the site called "ABOUTBFS", there are thousands of people with benign twitching and tremors and some have Fibro. Not ONE of them has ever developed als. Most have Fibro, ME/CFS, thyroid issues, pinched nerves in cervical spine and some have no idea why they twitch. I've had these...

I'm from the Miami area (Coral Gables) and have had this awful stuff since 1996. Fatigue, pain primarily on left side, sore trigger points and benign fasciculations when they're in flare, burning feet, weird "off center" feelings like I'm about to float out of my body, light sensitivity, GERD...

I can sympathize with all of you... unfortunately, most employers do not recognize "fibromyalgia" as a viable reason to be absent from work. It's a shame, because they have no idea how bad it can get. I recently got MRI results confirming degenerative changes in my neck that are pinching the...

Absolutely! Despite the fact that I have seniority at my job, I've taken the least desirable shift (12:30 pm - 9:00 pm). I awake at 9:00 am and it takes a hot shower, 3 ibuprofen, coffee and gentle stretching just for starters. They could offer me double my salary to switch shifts to an...

Sorry I'm just getting back to you. I've had the pain between the shoulder blades for a few years now. I go to roll over in the morning, and it is excruciating. It feels like someone has stitched all the muscles between my shoulder blades together, and it's often brought me to tears. It's...

My X-ray report showed disc degeneration and significant bone spur which seems to be encroaching on my nerve at C4-5 I think. My entire cervical spine was a mess, but I'm also dealing with horrid fatigue, burning feet, twitching (I've had them 17 yrs), neurogenic bladder, sexual dysfunction and...

I'm in the same boat. I have horrible pain between shoulder blades, a weak-feeling arm and leg, and often the bottoms of my feet burn like I'm on hot coals. The PA sent me for an X-ray and I go in Wednesday 7/2 for her to review it with me. I feel shaky and exhausted which results in awful...