Recent content by Sam66

  1. Sam66

    Daily struggle

    They have excellent topical CBD creams in Canada that relieve the pain if it's not too widespread. I'm sure they must be available in the U.S. with a medical card.
  2. Sam66

    Medications for Fibromyalgia Pain...

    Other medications they use for fibro is Cymbalta & Gabapentin. I was on Cymbalta for several years but it didn't provide much relief. I take a very mild dose of Gabapentin for nerve pain related to arthritis pressing on my spinal cord and find it to relieve some of my pain. If the pain is...
  3. Sam66

    CBD Oil = MAJOR improvement

    Many doctors and Pain Specialists in Canada actually prescribe CBD oils for fibromyalgia. Given the current opiod crisis which lets face it opiods don't really help and get you high and spaced out.....at least for me. High levels of CBD's help with fibro and the THC which gets you high helps...
  4. Sam66

    Disability decision from hearing- how could they do this with my medical evidence

    I have heard the horror stories of people with Fibro obtaining Disability including some close friends of mine. I was hesitant to apply thinking I too would need to fight ......and let's face it we all fight everyday just to do 1/8th of the things we used to do. Recently in Canada the courts...
  5. Sam66

    help please

    Vicky and Diamond are completely right. You need to listen to your body. When you are too fatigued to do anything then allow yourself to do nothing. You need to take the pressure and expectations off yourself and just let go for as many days as you need. If your feeling good than take a...
  6. Sam66

    Seeing a Pain Specialist / Consultant ??

    Thank you for your well wishes. Yep all four aneurysms have been coiled in 3 separate surgeries. They found another but it's two small for treatment so it will just be a watch. Some people are just susceptible apparently.
  7. Sam66

    Seeing a Pain Specialist / Consultant ??

    I am seeing a pain specialist. I also have cervical spinal stenosis. I did have ablation of the neck however it unfortunately did not work. I have found the lidocaine and ketamine infusions to be helpful. In Canada our Health care system allows one every two months. Although recently I was...
  8. Sam66

    How many people with Fibro have been in a car crash or simlar tramatic experiance

    I also had a fall from a chair onto a concrete walkway....Chipped my tailbone, whiplash neck to thoracic spine about three years prior to my diagnosis. I didn't slow down or take the time to heal. My life was filled with family, and work stress. I continued to work 7 days a week for 10 to 12...
  9. Sam66

    Face to face

    I am in Canada and the system is no better. We are treated like lairs and drug addicts. It's up to us to prove we are ill and at the same time the effects are so random and inconsistent we can't even explain it ourselves. They take advance of the fact that there are no tests, no consistent...
  10. Sam66

    New diagnosis

    I was misdiagnosed by my first rheumatologist with Rheumatoid arthritis and prescribed methotrexate. I took it for months but it didn't help because I had FM. I am now taking Cymbalta which does help. Glad to hear that you are on one of the FM meds and I hope it works for you.
  11. Sam66

    Sleep apnoea?

    I had a sleep study done a year before my FM diagnosis because my husband was saying that I stopped breathing during the night and had gasping noises.......never woke me up. I was advised that I was borderline Sleep Apnea with Restless leg syndrome and I snore at 68 decibels. Recently my...
  12. Sam66

    How can you describe your fatigue?

    I know it's almost impossible to explain to someone that doesn't feel it what it's like. I just try to say my whole body feels like lead weights and my head feels like cotton but even that doesn't come close to what a non fatigue suffer can really understand.
  13. Sam66

    Diagnosed in January 2017

    I haven't heard of methotrexate in treating FM. I was prescribed methotrexate when my first Doctor mistakenly diagnosed me with Rheumatoid Arthritis.
  14. Sam66

    Clothes and shoes

    I can definitely relate. No more sexy shoes or heels for me. Feet hurt. Who says women need to wear a bra? Hurts my shoulders so I go without. Lucky for me my chest is small.:lol: The constant breaking out in a sweat means loose clothing that is made of a breathable fabric. I need more...
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