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I think the thing that has challenged me the most getting crook so young is getting your head around and past the stage of grieving those things that now may not be or arent really an option for you anymore, myself i adore running, it was always my stress outlet, if i had a shitty day all i...

Welcome, i can certainly relate, although im older now(30) i was 21 when i got crook. As unhelpful as it sounds, finding out how to cope and navigate this, IMO, is highly person specific, we here could suggest hundreds of things, however just because they work for one with Fibro doesnt mean...

Its honestly so bad, and they dont realise just how loud it is, and you get the whole oh its not that loud is it... YES IT IS THAT FRIGGIN LOUD 😭😭

Oh my you hit the nail on the head there, for me it has got to be one of the most irritating noises ever, and when your in pain(so most of the time for us 🤦‍♀️) that patience string can be a lot shorter at times, the pillow bit made me laugh, i dont quite smack him with a pillow i just stuff...

Ahh dear here i am at the end of a brutal day painwise. My partner has also had a big week and he does a manual labour job. Hes an incredible man and i love him to pieces but i am seriously struggling with his snoring. Ive tried ear plugs etc, hes tried a cheap mouth guard and this mouth spray...

It sounds to me like you are trying to do all the right things you can with the cards youve been dealt. For me the immune suppressants for the ankylosing spondylitis worked wonders and made a massive difference, it was harding getting through the 6 to 8 weeks of seeing if theyd help or not but...

The juggling act as well as trying to just deal with life can feel exceptioning daunting and overwhelming. I wish i had a one stop shop answer or suggestion and am sorry you are struggling at the moment ❤️ My situation is slightly different, i have active ankylosing spondilitis, ehlers danlos...

Its really not been great, the ankylosing spondilitis is definitely savage and inescapable, even the fringe symptoms are awful, swelling and inflammation in the feet and hands(the feet swelling, you push on it and your finger indent stays for like an hour 🤦‍♀️) and the feet first thing in the...

Its extremely frustrating, i got the ankylosing spondilitis diagnosis and started on immune suppressant and they worked amazing, my pain levels and fatigue were the lowest theyve been since i first got crook. I had to stop them to have my ankle operated on and when i restarted them they didnt...

Oh the challenges 🤦‍♀️ wouldnt it be nice to have the choice/option "to take a day off" from being crook!!!!! I might have to move to the complain, moan and vent thread🤦‍♀️ i am so f###ing over being crook(more how crook i am and have been for since September). I've accepted that i have these...