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  1. D

    Frustration!

    Cmetryme,Yes! exactly. The rash is butterfly shaped. I just wish my doctors would take it more seriously. I need to press the issue. That's really terrible. I'm sorry you have to suffer. This autoimmune and fibro stuff is so unfair for people. Aren't the lupus medications steroids? Are you...
  2. D

    Frustration!

    northernelf, I can relate. When I first started getting symptoms it was achy knees and I was tired a lot. Now I have the rashes, hair loss & hair that breaks off, I have Raynaud's phenomenon, muscle tightness & pain, pain in all my joints with some serious stiffness and burning, my knees swell...
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    Frustration!

    Hi cmetryme. Thank you for responding to me. I appreciate it. I am sorry that you have both illness. How long did it take to get a lupus diagnosis? Was it based on a lot of positive blood tests? I read all over the internet that lupus can take 5 or more years to get diagnosed. I've also read...
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    Frustration!

    Hi everyone! My name is Danielle and I am 22 years old. I am new to this site but I am not new to pain , exhaustion , ager, confusion and so many of the other feelings that come with illness and working with doctors. Even though lupus is always the first thing that doctors think I have, it not...
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