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    frustrated with generic symptoms

    Hi, I am new to this site but reading the posts has helped me feel like I am not alone. My journey started in Aug 2009. I had generic symptoms, starting with swelling in my hands and fatigue. I have been to several specialists each time a "new" symptom would appear and every test would come...
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    • back brain chronic chronic fatigue syndrome comfortable cramping cramps doctors emg fatigue frustrated ice job meds men mestinon muscle muscle twitching neurologist pain problem swelling symptom symptoms test testing treatment twitches twitching vent vision work working
    • Replies: 1
    • Forum: Chronic fatigue
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    Protomyxozoa Rheumatica

    Protomyxozoa Rheumatica is a parasite discovered by hemotologist, Dr Steven Fry. He believes the organism may cause numerous neurological diseases, including ALS. The following is Part I of the transcript of a recent interview with Steven Fry, MD. Please do not expect your physician or other...
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    • acne activity als alternative medicine autism book books brain fog catheter cfs chronic chronic fatigue syndrome clinical complain conditions diabetes doctors doxycycline drugs early energy exercise exhausted fatigue fever fibromyalgia flares foods frustrated frustration good grant happy headaches health healthy heat helpful information looking for medications medicine mercury muscle pain natural neurology pain problem relief research rheumatologist school sensitivity sick specialist story supplements support survey symptoms teen test testing tests therapy understanding wanted website work working worldwide wrong
    • Replies: 0
    • Forum: General discussions about fibromyalgia
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    A Miraculous Misdiagnosis!

    Initially I was despondent upon being diagnosed with an inexplicable genetic variant of juvenile amyotrophic lateral sclerosis. Being only 18 I assumed there was little if anything to remain living for. This all persisted until I stumbled upon an article regarding chemical neurotoxins and a...
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    • about me als atrophy autism back brain brain fog death dementia diagnosis diet fibromyalgia foods ftd genetic gluten gratitude misdiagnosis muscle neurology phlegm research symptoms test working
    • Replies: 9
    • Forum: General discussions about fibromyalgia
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    General Question/Looking for answers

    I was diagnoses 6yrs ago with RSD about 2 years into it I started have tremendous muscular pain in my arms & must of all in my legs. For the last 4 yrs, I started to feel like I was going crazy. The doctors just switched me fron muscle relaxer to muscle relaxer. And no changes, things were just...
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    • advice cramps doctors enzymes fibromyalgia good hope info looking for massage meds muscle muscle biopsy neurologist pain problem rheumatologist rsd scared sore spasms story test wrong
    • Replies: 1
    • Forum: Do I have fibromyalgia?
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    Fibromyalgia blood tests

    GP told me this am that blood tests for fibromyalgia were negative and that Carpal Tunnel would not explain all of my symptoms and neither would GERD or RSI Now looking for signs of muscle atrophy and loss of strength.... not a happy bunny
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    • atrophy fibromyalgia fibromyalgia blood test happy looking for muscle symptoms test tests
    • Replies: 1
    • Forum: Do I have fibromyalgia?
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    Possible als or fibromyalgia opinions please?

    been a while for diagnosed i thought it was MS never heard of ALS untill a posting on MS site lady said possible MS.. but wait and see, ive had twitching since aug or earlier of 10* and has gotton worst, alsoo had lower back spasms which thught i hurt at wrk blew EVRYTHING OFF.. i mean what...
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    • als arm awareness back brain bulbar death early emg exercise eye falling fell fibromyalgia flu food heart hope info leg meds night possible als?? scared sleep spasms story swallow test testing twiching twitching weakness wrong
    • Replies: 68
    • Forum: Do I have fibromyalgia?
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    Re: A few major concerns

    Re: A few major concerns Does anyone here know, from their journey to diagnosis--if atrophy is possible with MS? I keep thinking that if I had ALS, I'd be worse than I am after a year of atrophy in my hands. Is that a valid assumption? I know the neurosurgeon was concerned--but do EMG/NCVs...
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    • als anxiety arm atrophy back conditions diabetes diagnosis doctor emg fibromyalgia florida frustrated good health heart insurance lost men mri ms? muscle research sick specialist stroke test tests weakness worried wrist
    • Replies: 0
    • Forum: General discussions about fibromyalgia
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    MRI Ok, B12 good, muscle weakness

    Hi, I don't know how to start this, only by asking some questions. I know you guys can't diagnose me or anything, I'm working on things-I just want to know if some of the symptoms I've been having for years are real. I had the muscle twitch test done, and the docs thought I had PLS. I had a lot...
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    • back bed choke cramps crying diagnose equipment feet fingers flu good heat how to humidity ice leg lithium looking for mri muscle muscle twitch muscle weakness neck pain pls problem questions sick swallow symptoms test tests twitch twitches weakness working wrong
    • Replies: 21
    • Forum: Chronic fatigue
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    how tell fatigue from disease from not sleeping?

    Hi everyone. You all have big hearts and I appreciate the time and help. I wrote in a different thread, under "husband," but this is a specific question; when the doctor asks if you feel fatigue at the end of the day, how on earth can you separate exhaustion because you're not sleeping at night...
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    • advice als clinical cramps diet doctor doctors early emg fatigue how to information learning mnd mri muscle muscle weakness night questions swallowing symptoms test weakness weight weight loss
    • Replies: 15
    • Forum: Chronic fatigue
  10. G

    does anyone know anything about fybromyalgia

    I have been having intense pain in the ribs, and of course the muscle fasiculations. Aweful back pain and knee pain- could this be fybromyalgia? Do you know what they use to test for that? I had a negative emg and do not usually have heartburn or anything like that.
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