lifeisa_highway89
New member
- Joined
- Jan 10, 2016
- Messages
- 2
- Reason
- DX FIBRO
- Diagnosis
- 05/2010
- Country
- AU
- State
- SA
Hi I'm going to try make this very short as its 1.30am here, most dates are very rough as I'm guessing.
At 20 years old I had my first child via c/s. 5 months later my elbow joint were stiff,
I had some blood tests done and showed some high inflammatory markers and my rhumtoid factor was a little high. I had to wait 8 months to see a RA specialist by the I couldn't even get on the floor and play with my baby. My
Mood changed massively when baby was about 10 months old. (Depression but didn't know at the time).
He gave me a 6 week dose of steroids some blood tests and a check up. I did the 6 week dose and then fell pregnant, felt great, I was told it was probably just an unusual bout of inflammotory and I'd probably wouldn't have to see him again.
had another c/s then at 3 weeks pp, depression was unbearable that I went onto lexapro for that then at 5 week pp my incision swelled and my joints and body went weird again. Went back to specialist other than a high inflammatory marker everything else seemed fine.
I was given the answer must be RA and was given steroids and plaqunil because that's all I was able to take while breastfeeding. Didn't work,
Tried another that I can't remember, didn't work. Then I went into sulfasalazine and was on 3000mgs a day, 6 bloody tablets. It helped a little and it started to go away. I went cold
Turkey after about 1 1/2 years and was fine, no symptoms at all.
Then the start of 2015 I had to have a patella stabilisation due to how I was born as I was told (the other needs to be done too) and it set it off again and I've been put into 10mgs methotrexate and that wasn't helping so then up to 20mgs. I have what they call aero-negative rheumatoid arthritis as my blood results show nothing but high inflammation. I'm also on 30mgs lexapro.
But today hoooooly soreness! Every single bone in my body hurts like growing pains 10000x, the joints are grinding, don't touch me as it feels flu like without it actually being the flu. My chest hurts so bad and I'm so scared of my heart failing on me (I worry way too much). My spine hurts, everything just hurts. I lay here in bed and I can feel the pain pulsate in an area and then it'll most some where else and pulsate and then move again, it soulds like its so fake when I try to explain it but it's so bad. Normal Panadol doesn't work, I can't take nurofen or naproxen because it makes my belly sick and endone and things like that put me to sleep but don't actually help with the pain as such.
Does the seem like RA? It's so hard for me to accept this diagnosed with such a yes no then yes answer with no actually written proff to see with my own eyes. It stresses me out so much. Methotrexate days are Friday and Sunday is when I take my folic acid which was today or yesterday as its now 1.40am.
Hope this makes sense as I can't check because I'm on my phone.
At 20 years old I had my first child via c/s. 5 months later my elbow joint were stiff,
I had some blood tests done and showed some high inflammatory markers and my rhumtoid factor was a little high. I had to wait 8 months to see a RA specialist by the I couldn't even get on the floor and play with my baby. My
Mood changed massively when baby was about 10 months old. (Depression but didn't know at the time).
He gave me a 6 week dose of steroids some blood tests and a check up. I did the 6 week dose and then fell pregnant, felt great, I was told it was probably just an unusual bout of inflammotory and I'd probably wouldn't have to see him again.
had another c/s then at 3 weeks pp, depression was unbearable that I went onto lexapro for that then at 5 week pp my incision swelled and my joints and body went weird again. Went back to specialist other than a high inflammatory marker everything else seemed fine.
I was given the answer must be RA and was given steroids and plaqunil because that's all I was able to take while breastfeeding. Didn't work,
Tried another that I can't remember, didn't work. Then I went into sulfasalazine and was on 3000mgs a day, 6 bloody tablets. It helped a little and it started to go away. I went cold
Turkey after about 1 1/2 years and was fine, no symptoms at all.
Then the start of 2015 I had to have a patella stabilisation due to how I was born as I was told (the other needs to be done too) and it set it off again and I've been put into 10mgs methotrexate and that wasn't helping so then up to 20mgs. I have what they call aero-negative rheumatoid arthritis as my blood results show nothing but high inflammation. I'm also on 30mgs lexapro.
But today hoooooly soreness! Every single bone in my body hurts like growing pains 10000x, the joints are grinding, don't touch me as it feels flu like without it actually being the flu. My chest hurts so bad and I'm so scared of my heart failing on me (I worry way too much). My spine hurts, everything just hurts. I lay here in bed and I can feel the pain pulsate in an area and then it'll most some where else and pulsate and then move again, it soulds like its so fake when I try to explain it but it's so bad. Normal Panadol doesn't work, I can't take nurofen or naproxen because it makes my belly sick and endone and things like that put me to sleep but don't actually help with the pain as such.
Does the seem like RA? It's so hard for me to accept this diagnosed with such a yes no then yes answer with no actually written proff to see with my own eyes. It stresses me out so much. Methotrexate days are Friday and Sunday is when I take my folic acid which was today or yesterday as its now 1.40am.
Hope this makes sense as I can't check because I'm on my phone.