Mcozy33
New member
- Joined
- Mar 25, 2015
- Messages
- 6
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- US
- State
- Ca
I am not sure what is going on with my but let me break down my experience. I would really appreciate any feedback that you guys can provide.
My symptoms started in October 2014.
I am a 33 year old female. I was experiencing extreme neck and shoulder pain, in addition to hand and arm pain that I thought was resulting from a writing intensive job. I was also experiencing headaches that were non-responsive to pain medication.
My GP sent me for a neck ex-Ray which showed straightening of the cervical lordosis. The doc thought my issues were a result of that and sent me to PT and Neuro to double check my headache issues.
Neuro examined me and sent me for an MRI of brain and CT scan of face. Both came back clear with exception of osteoarthritis in jaw. Neuro sent me for a million blood tests to make sure no auto immune disorder. Checked thyroid all that good stuff. I was also seeing a Chiro who helped immensely with neck and shoulder and arm issues. Around that time I started noticing muscle twitching all over my body (October/November).
I googled it and of course came to ALS. I spoke to my Neuro about it but he seemed unconcerned. Did an office exam and told me that he believed that it was stress. At this time I was also experiencing muscle soreness throughout my entire body. Like I had worked out really hard, but hadn't done anything. I went back for a follow up visit with my neuro and he said he suspected fibromyalgia and wanted to run some blood tests for that. He then went on a three mont vacation.
During that time I saw two additional Neuro's who both did NCS and and EMG on my arms, both also suggested fibromyalgia, anxiety, BFS. I continue to twitch and continue to be in pain. I cannot shake the feeling that I have ALS.
I have little twitches in my face, and my pain seems to vary from excruciating to somewhat bearable mostly in my back neck and shoulders, but my whole body generally feels sore most of the time. I also sometimes feel disoriented, and my memory is just garbage (kind of always has been). I have not reached an official diagnosis of fibro, but I think that is the direction that we are headed in.
I feel so crazy, and I just want to know what is wrong with me. Does this sound like fibromyalgia? Anyone experience anything similar?
Please help!
My symptoms started in October 2014.
I am a 33 year old female. I was experiencing extreme neck and shoulder pain, in addition to hand and arm pain that I thought was resulting from a writing intensive job. I was also experiencing headaches that were non-responsive to pain medication.
My GP sent me for a neck ex-Ray which showed straightening of the cervical lordosis. The doc thought my issues were a result of that and sent me to PT and Neuro to double check my headache issues.
Neuro examined me and sent me for an MRI of brain and CT scan of face. Both came back clear with exception of osteoarthritis in jaw. Neuro sent me for a million blood tests to make sure no auto immune disorder. Checked thyroid all that good stuff. I was also seeing a Chiro who helped immensely with neck and shoulder and arm issues. Around that time I started noticing muscle twitching all over my body (October/November).
I googled it and of course came to ALS. I spoke to my Neuro about it but he seemed unconcerned. Did an office exam and told me that he believed that it was stress. At this time I was also experiencing muscle soreness throughout my entire body. Like I had worked out really hard, but hadn't done anything. I went back for a follow up visit with my neuro and he said he suspected fibromyalgia and wanted to run some blood tests for that. He then went on a three mont vacation.
During that time I saw two additional Neuro's who both did NCS and and EMG on my arms, both also suggested fibromyalgia, anxiety, BFS. I continue to twitch and continue to be in pain. I cannot shake the feeling that I have ALS.
I have little twitches in my face, and my pain seems to vary from excruciating to somewhat bearable mostly in my back neck and shoulders, but my whole body generally feels sore most of the time. I also sometimes feel disoriented, and my memory is just garbage (kind of always has been). I have not reached an official diagnosis of fibro, but I think that is the direction that we are headed in.
I feel so crazy, and I just want to know what is wrong with me. Does this sound like fibromyalgia? Anyone experience anything similar?
Please help!