Hi all,
I'm just here to see if anyone with Fibromyalgia have similar symptoms as myself. I've been living with Spondylitis (Arthritis) for 20-25 years. So basically long term pain and fatigue. Over the last few years I seem to have added a new and very long list of symptoms that I'm dealing with probably every day of the year.
6 Years ago I started getting night time jerks in my left arm, sometimes both at the same time or even full body. Normally when resting or when in bed.
In the last year this has become worse and is now happening throughout the day. Its normal for me to have a lot of twitching/jerking movement the second I get to relax. At the end of a working day my muscles are extremely tense, normally when I get to my car after work and sit down the arm tic movements start.
I have recently had four partial fits, after the last one I couldn't stop the sudden movements in my arm/body for a number of weeks. I never lost consciousness but I had no real control during the fit. For a few days i felt weak, slower mentally and had bad migraines which never happens. That last fit was over two months ago and everything is starting to calm down now.
And yes I have been to a doctor and my rheumatologist who were not helpful to say the least.
I have also been having extreme nerve pains, just random strikes in any part of my body. Sometimes if feels like a bee sting, a lighting strike, other times it feels like multiple needles followed by a deep drumming pain and other times it feels like the arthritic pain but no where near a joint.
My hands have been a problem, I'm an office worker and typing some days is nearly impossible by the end of the day. They always have a slight pins and needles feeling with a bit of random nerve pain and can feel hot high blood pressure, if that makes any sense.
My feet and ankles have a very similar feeling. Normally by the end of the day it feels like I've been on my feet all day.
In terms of general pain, I think it would be easier to just say my ears and belly button are never sore. Every part of me will have some pain during the day, joint, bone and just a blanket of pain over a large area is normal.
My sleep is fairly good but I can never really sleep in. I always wake feeling uncomfortable, probably due to the arthritis. Its extremely rare for me to wake up and feel refreshed. I need a lot more sleep than my family and partner, I'm generally exhausted by early afternoon even if I've spent the day relaxing.
Late afternoon I nearly always have a temperature. During the day around aircon I wear a jumper to keep warm. And I have earphones in to stop the waves of noise, people all around talking has never been easy for me.
I have always had strong responsive pain when it comes to prolonged touch. Say if my partner rests her head on my chest, after a minute or two I'm basically holding back a scream. If she rests her head on my arm it will instantly be numb and then painful. But in saying that my skin isn't oversensitive, some textures will feel like hot sandpaper but generally speaking I'm fine in that regard.
I get a very heavy feeling in my body when I'm tired, sort of like wearing a full body lead apron but that could be my AS.
I've been on a Vegan diet now for 6 weeks due to a liver LFT's problem. Another thing that have the doctors scratching their heads after lots of tests and strict dieting.
I have had previous bowel problems, with rather serious crones like symptoms but nothing diagnosed. I normally wake up bloated, there isn't anything that seems to trigger it that I can see. The diet has maybe improved it but by a very marginal amount.
I don't believe I have brain fog as described. If I'm stressed or super anxious then yes I definitely have problems getting my brain to give me words to say or sometimes I can't understand what people say at the start of a sentence but i'd guess its sort of normal. I do seem to be very stressed and anxious these days, thinking back a few years ago I didn't have anxieties at all.
Depression goes hand in hand with 20 plus years of Arthritis, I think that's to be expected.
Maybe too long but probably too brief to explain everything. It was the ticks/jerking movements that got me onto looking at other disorders other than AS. A day after the last fit my doctor was nice enough to ask me if I was a drug addict looking for muscle relaxants and has since ignored the problem. So as you could probably understand a see your doctor comment isn't what I'm looking for, just general comments about your experiences as a diagnosed fibromyalgia sufferer is fine with me
I'm just here to see if anyone with Fibromyalgia have similar symptoms as myself. I've been living with Spondylitis (Arthritis) for 20-25 years. So basically long term pain and fatigue. Over the last few years I seem to have added a new and very long list of symptoms that I'm dealing with probably every day of the year.
6 Years ago I started getting night time jerks in my left arm, sometimes both at the same time or even full body. Normally when resting or when in bed.
In the last year this has become worse and is now happening throughout the day. Its normal for me to have a lot of twitching/jerking movement the second I get to relax. At the end of a working day my muscles are extremely tense, normally when I get to my car after work and sit down the arm tic movements start.
I have recently had four partial fits, after the last one I couldn't stop the sudden movements in my arm/body for a number of weeks. I never lost consciousness but I had no real control during the fit. For a few days i felt weak, slower mentally and had bad migraines which never happens. That last fit was over two months ago and everything is starting to calm down now.
And yes I have been to a doctor and my rheumatologist who were not helpful to say the least.
I have also been having extreme nerve pains, just random strikes in any part of my body. Sometimes if feels like a bee sting, a lighting strike, other times it feels like multiple needles followed by a deep drumming pain and other times it feels like the arthritic pain but no where near a joint.
My hands have been a problem, I'm an office worker and typing some days is nearly impossible by the end of the day. They always have a slight pins and needles feeling with a bit of random nerve pain and can feel hot high blood pressure, if that makes any sense.
My feet and ankles have a very similar feeling. Normally by the end of the day it feels like I've been on my feet all day.
In terms of general pain, I think it would be easier to just say my ears and belly button are never sore. Every part of me will have some pain during the day, joint, bone and just a blanket of pain over a large area is normal.
My sleep is fairly good but I can never really sleep in. I always wake feeling uncomfortable, probably due to the arthritis. Its extremely rare for me to wake up and feel refreshed. I need a lot more sleep than my family and partner, I'm generally exhausted by early afternoon even if I've spent the day relaxing.
Late afternoon I nearly always have a temperature. During the day around aircon I wear a jumper to keep warm. And I have earphones in to stop the waves of noise, people all around talking has never been easy for me.
I have always had strong responsive pain when it comes to prolonged touch. Say if my partner rests her head on my chest, after a minute or two I'm basically holding back a scream. If she rests her head on my arm it will instantly be numb and then painful. But in saying that my skin isn't oversensitive, some textures will feel like hot sandpaper but generally speaking I'm fine in that regard.
I get a very heavy feeling in my body when I'm tired, sort of like wearing a full body lead apron but that could be my AS.
I've been on a Vegan diet now for 6 weeks due to a liver LFT's problem. Another thing that have the doctors scratching their heads after lots of tests and strict dieting.
I have had previous bowel problems, with rather serious crones like symptoms but nothing diagnosed. I normally wake up bloated, there isn't anything that seems to trigger it that I can see. The diet has maybe improved it but by a very marginal amount.
I don't believe I have brain fog as described. If I'm stressed or super anxious then yes I definitely have problems getting my brain to give me words to say or sometimes I can't understand what people say at the start of a sentence but i'd guess its sort of normal. I do seem to be very stressed and anxious these days, thinking back a few years ago I didn't have anxieties at all.
Depression goes hand in hand with 20 plus years of Arthritis, I think that's to be expected.
Maybe too long but probably too brief to explain everything. It was the ticks/jerking movements that got me onto looking at other disorders other than AS. A day after the last fit my doctor was nice enough to ask me if I was a drug addict looking for muscle relaxants and has since ignored the problem. So as you could probably understand a see your doctor comment isn't what I'm looking for, just general comments about your experiences as a diagnosed fibromyalgia sufferer is fine with me