DenieceR1987
New member
- Joined
- Nov 27, 2023
- Messages
- 3
- Reason
- DX FIBRO
- Diagnosis
- 11/2023
- Country
- US
- State
- AZ
Hello all - hope everyone had a great holiday and a relaxing weekend.
New member here, so here it goes...
Just turned 36, married, have a 15 year old daughter, pets, life has been great so far but constantly exposed to stress.
On and off I've been on Adderall for the last couple of years - more on than not, ended up changes doctors several times as I felt like I didn't need it, and other physicians saying that I do and so it began the turmoil. In June this year, we had a home remediation that took several weeks. It was very frustrating, and probably the most stressful event I've ever experienced non-stop. Around this time I went from going to the gym daily, to extreme fatigue, heavy legs, feeling like I'm going to pass out, thirst, excessive peeing. After several trips to the ER, they said I was anemic and iron deficient and my thyroid was out of whack. (No surprise on the iron, because I've been this way throughout life). After visiting several endocrinologists that prematurely placed me on anti-thyroid medication, my health took for the worst and I could not even get out of bed. I was shaky, weak, couldn't shower or eat, high blood pressure and felt like I'm going to pass out. I was abruptly taken off of the thyroid medication, and after a few weeks, my thyroid and hormones settled out. I ended up getting iron infusions, and little by little I started to get better, but I am nowhere near where I used to be. ..
I cannot go through normal household chores without feeling malaise, gradually getting weak again. I constantly have migraines on and off. Sore, stiff muscles, and just achy all over. It gets worse around my menstrual cycle and I have no idea why. Hormones have all been checked, but I do have PCOS. I have been ruled out by endocrinologists, neurologist, cardiologist conducted an echo which came back fine. a Plethora of labs have been done.... ANA, myositis, CRP, ERP, CBC, CMP, B12, Vitamin D, CK, TSH, T4, T3, cortisol, ACTH, aldosene, etc. I've had a thyroid scan done which was fine, and a brain and neck MRI and only showed mild/borderline chiari malformation but was told it shouldn't contribute to my symptoms as it was just an incidental finding. Two rheumatologists have said it looks like Fibromyalgia but did not want to give a definitive answer. Some days I feel OK other days I don't/can't leave the house because I feel scared of getting worse. Stress completely makes it worse.
Doctors don't have a lot of knowledge on Fibromyalgia. I've even wondered if this is some sort of Chronic Fatigue because this all happened around the time we had so much stress and I was on the Adderall medication. I sleep okay at night, but I feel like my old life was stolen from me and it is just a memory. Thank you for allowing me to vent.
I am seeing my 3rd rheumatologist Friday morning and hoping to possibly revisit some adrenal testing. I am out of avenues to check at this point. Life is just passing me by.
New member here, so here it goes...
Just turned 36, married, have a 15 year old daughter, pets, life has been great so far but constantly exposed to stress.
On and off I've been on Adderall for the last couple of years - more on than not, ended up changes doctors several times as I felt like I didn't need it, and other physicians saying that I do and so it began the turmoil. In June this year, we had a home remediation that took several weeks. It was very frustrating, and probably the most stressful event I've ever experienced non-stop. Around this time I went from going to the gym daily, to extreme fatigue, heavy legs, feeling like I'm going to pass out, thirst, excessive peeing. After several trips to the ER, they said I was anemic and iron deficient and my thyroid was out of whack. (No surprise on the iron, because I've been this way throughout life). After visiting several endocrinologists that prematurely placed me on anti-thyroid medication, my health took for the worst and I could not even get out of bed. I was shaky, weak, couldn't shower or eat, high blood pressure and felt like I'm going to pass out. I was abruptly taken off of the thyroid medication, and after a few weeks, my thyroid and hormones settled out. I ended up getting iron infusions, and little by little I started to get better, but I am nowhere near where I used to be. ..
I cannot go through normal household chores without feeling malaise, gradually getting weak again. I constantly have migraines on and off. Sore, stiff muscles, and just achy all over. It gets worse around my menstrual cycle and I have no idea why. Hormones have all been checked, but I do have PCOS. I have been ruled out by endocrinologists, neurologist, cardiologist conducted an echo which came back fine. a Plethora of labs have been done.... ANA, myositis, CRP, ERP, CBC, CMP, B12, Vitamin D, CK, TSH, T4, T3, cortisol, ACTH, aldosene, etc. I've had a thyroid scan done which was fine, and a brain and neck MRI and only showed mild/borderline chiari malformation but was told it shouldn't contribute to my symptoms as it was just an incidental finding. Two rheumatologists have said it looks like Fibromyalgia but did not want to give a definitive answer. Some days I feel OK other days I don't/can't leave the house because I feel scared of getting worse. Stress completely makes it worse.
Doctors don't have a lot of knowledge on Fibromyalgia. I've even wondered if this is some sort of Chronic Fatigue because this all happened around the time we had so much stress and I was on the Adderall medication. I sleep okay at night, but I feel like my old life was stolen from me and it is just a memory. Thank you for allowing me to vent.
I am seeing my 3rd rheumatologist Friday morning and hoping to possibly revisit some adrenal testing. I am out of avenues to check at this point. Life is just passing me by.